Seizures in adults

How do I know if a seizure is a symptom of a brain tumour?

All seizures should be checked out by your GP or A&E doctors as they could be due to a serious condition including a brain tumour.

You might think of shaking fits when you hear the term, ‘seizure.’ These type of seizures are known as tonic-clonic. During one of these, the person usually loses consciousness and falls down with a stiff body and jerking limbs.

But, this type of seizure is relatively rare when it comes to brain tumours.

There are lots of types of seizure. The type most commonly associated with brain tumours is called a focal (or partial) seizure.

Focal seizures affect only one part of the brain and can affect your movement and/or your level of consciousness or awareness.

The symptoms you have will be different according to where the seizure starts in the brain.

The following are examples of what can happen – you may experience something different.

Symptoms of a focal seizure include:

Focal aware seizures

A small part of one side of the brain is affected. You’ll remember the seizure afterwards, even if you can’t describe it. Symptoms include:

• feeling a bit strange or absent (spaced out). You may not even notice this sort of seizure yourself – it may be recognised by others around you 
• intense feeling of emotion
• unusual smell or taste
• feeling of ‘déjà vu’ (I’ve been here or done this before) or ‘jamais vu’ (familiar things seem new)
• rising feeling in the stomach, like you may get on a fairground ride
• muscle stiffness or twitching that can spread from the hand or foot and may affect half of the body
• feeling of not being able to speak despite being fully conscious
• numbness or tingling
• burning sensation
• feeling that an arm or leg is bigger or smaller than it is
• visual disturbances, such as coloured or flashing lights
• hallucinations (seeing something that isn’t there).

Focal impaired awareness seizures

A larger part of one side of the brain is affected. Your consciousness is affected – you may be confused, unaware of what you’re doing, and unlikely to remember what happened afterwards. Symptoms include:

• you may not fully understand people or be able to respond to them, even though you can hear them
• if spoken loudly to, you may think the other person is being aggressive
• wandering around in a confused manner
• language problems, such as comprehension
• making strange or repetitive movements or sounds (called ‘automatisms’)
• visual disturbances, such as coloured or flashing lights
• hallucinations (seeing something that isn’t there).

Some of these may start as a focal aware seizure. They can last from around 15 seconds to 2-3 minutes. After this type you may still feel confused, making it difficult to tell when the seizure has ended. This is called post-ictal confusion. You may also feel tired and need to rest.

What to do if someone has a seizure, or you think you’ve had one?

All seizures should be checked out by your GP or, depending on the severity, an A&E doctor, to find out the underlying cause.
The symptoms listed above are examples of the type of seizures normally associated with brain tumours. However, having these symptoms does not mean you have a brain tumour. 

It is possible, though rare, for brain tumours to cause other types of seizure, such as the tonic-clonic (convulsive) type seizure.

If you see someone having a convulsive seizure, it can be scary. But, if you feel comfortable, there are some things you can do to help:

• Don’t move them unless it’s necessary, like if they’re in danger where they are
• Place something soft under their head, if they’re on a hard surface
• If there is tight clothing around their neck, see if you can loosen it
• Once the fit has stopped, gently turn them on their side
• Try to comfort them by talking to them as they come out of the fit
• Write down any details you can remember to help medical staff. These could be the time of the seizure, how long it lasted, the symptoms, if the person said anything beforehand, and things like that.

Actions to take Questions to ask Resources to explore

• Track your seizures through BRIAN’s quality of life tracker, noting when they are worse or better, any patterns that you see or any changes
• All seizures should be checked by your GP, or depending on the severity, an A&E doctor. Make sure you talk to the relevant medical professional
• People often experience more than one symptom before a diagnosis, so make sure you understand what other symptoms a brain tumour can cause
• Book an appointment with your GP for a check up, and keep a note of any questions that you want to ask
• Take a look at our page about talking to your doctor for some ideas of what to ask and what to expect.

• Do you think I could have a brain tumour based on my symptoms?
• What else could be causing my symptoms (changes in lifestyle, other medical conditions, etc)?
• How can I manage the symptoms I am experiencing?
• Do I need to be referred to see somebody else about my concerns?
• If I need to make another appointment, when should this be made for? Who should I talk to?

• Learn about the symptoms of a brain tumour
• Talking to your doctor
• Find out more about the symptoms caused by tumours in specific areas of the brain
• Treatments for seizures and epilepsy
• Coping with seizures and epilepsy

I think I have a brain tumour, what should I do?

Brain tumours are rare, however, if you’re worried and a symptom persists or if you have more than one symptom of a brain tumour then:

• Talk to your doctor
  GP appointments are usually quite short, so make sure you find out how to best prepare for your appointment.
• Get an eye test
  If your symptoms are limited to changes in vision and/or headaches, get your eyes tested by an optician before seeing your GP.
• Go to A&E
  If the symptoms are sudden or severe, you should go to your emergency department or call 999.

Know the Signs and Symptoms

Although brain tumours are rare, if you or a loved one are experiencing two or more of the signs and symptoms it’s important that you speak to your doctor to rule out a brain tumour.

Go to the BSTT Website

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