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(no title) (no title) (no title) (no title) ‘Brain tumour is just part of my life now’ says daughter as she returns to work. ‘Losing Dad helped me to be the best person that I can be.’ ‘My heart breaks for those less fortunate than me’ ~ Nikita was diagnosed after a private brain scan ‘Positivity helps me to lead a happy life following my GBM diagnosis’. ‘The Day My Life Changed Forever’ – Matthew’s story ‘Why do clinical trials matter?’ ‘Eddie and the Magic Healing Stone’: helping children understand brain tumours ‘Noah’s Ark’ language test could help diagnose brain tumours earlier ‘So much more than a walk in the park’ ~ Chris’s Twilight Walk story ‘Top 10 Neuro-Oncology Uncertainties’, identified by the James Lind Alliance “An eye test led to my brain tumour diagnosis.” “By explaining my own patient journey, I could help others with theirs.” “Cancer is always the third person in our relationship, but I’ve never been happier!” “Carpe Diem! That motto is important to me.” ~ Natalie’s story “Daniel would want me to enjoy the festive season,” says grieving wife. “Doctors dismissed my symptoms as a cheese allergy!” “Don’t let your illness make you feel negative about everything.” “Falling 10,000 feet at 125mph is less scary than facing a brain tumour.” “He is surviving but not living,” says wife caring for husband with brain tumour. “I cared for my husband with cancer with an undiagnosed brain tumour.” “I had a stroke at 11 and doctors told my parents to take me home and wait for ‘the big one’!” “I may not have had my symptoms checked if I hadn’t been furloughed.” “I partied to forget about my brain tumour,” says University graduate. “I refuse to be defined by my diagnosis – Karen Bucknall’s story “I spent my teenage years living with an undiagnosed brain tumour.” “I take one step at a time” – Emily’s story “I tend to avoid bothering the doctors” – Daniel’s story “I was convinced no one would be interested in me as soon as I told them I had a brain tumour.” “I was in two car accidents before my brain tumour was diagnosed.” “I was told at 24 years old that I am terminally ill and given a prognosis. There’s no good way to cope with that.” “I was training to be a nurse so I knew exactly how important it was to listen to the patient. But I felt that no one was listening to me!” “I wish support had been flagged up when I was diagnosed.” “I’m running this for you, John!” “Investment in research is vital, to encourage bright minds to ask new questions, and challenge existing ones around glioblastomas.” “Little did I know, those few lines would change my life forever.” – Jayne’s story, “Looking back… there were loads of symptoms I brushed off.” “Mum died from a brain tumour three hours before my wedding” “My brain tumour was only found after my pancreatic tumour.” “My career with the Ambulance Service helped me understand Mum’s diagnosis.” “My son’s brain tumour reminded us that life is unpredictable,” says devoted mum. “Never lose hope and to live your best life regardless of where you are in your brain tumour journey.” “One minute we’d welcomed Erin into the world. The next, I was told I had a brain tumour.” “Our friend Iggy was an inspiration!” “Our world came crashing down when Lizzie was diagnosed with a diffuse midline glioma” “Over the years, this event has become so much more than just a fundraising walk.” “Research into brain tumours is crucially important” “Research into more effective treatments is so urgently needed.” “Research into other ways of treating meningiomas could make a massive difference to people like me.” “The Brain Tumour Charity helps me feel that I am not alone.” “The Brain Tumour Charity helps me to keep things in perspective.” “The brain tumour left behind devastation in our family.” “There is nothing more important than saving lives and without research the reality is that lives will be lost.” “There needs to be a better roadmap for glioblastoma recurrence” “This profound adventure is now part of who I am.” “This should never have been part of Ramona’s life” “We are failing people with brain tumours!” “We had to find out so much ourselves.” “We need to keep talking about glioblastomas.” Georgie’s story “We owe it to my brother,” says sister who lost sibling to a brain tumour. “We thought Dad had brain fog after his Covid vaccination.” “Glynwen was looking down on every step of the way.” “Having the right information, advice and support is hugely important, both practically and emotionally.” “I do struggle with thoughts of what the future holds for our family, including what the next Mother’s Days may be like.” “I had read so much about other cancer types but nothing about brain tumours – that’s not OK and we need to raise their profile more.” “I hope to raise more awareness about brain tumours like Emily’s, and more funding so a cure can eventually be found.” “I knew I had to go to A&E. One of the first thoughts I had was: I’ve got a brain tumour.” “I only remember talking to the anesthetist about ‘RuPaul’s Drag Race’.” “I really believe that football has the power to uplift you at the darkest times and unite you, no matter where you are in the world.” “I should have seen my GP earlier but I knew nothing about brain tumours.” “If it wasn’t for our desperation, we wouldn’t have got a scan.” “It changes everything” – the impact of living with a lower-grade glioma “It fills me with hope to hear and see first-hand how much effort is being poured into research by scientists.” “It’s a delicate dance” – the impact of caring for someone with a lower-grade glioma “It’s shocking that it took me 15 years to get an accurate diagnosis.” “It’s so important that everyone has access to the same treatment, care, support and medical expertise.” “Learning piano helped my recovery.” “Learning to live with a brain tumour is challenging but you just have to stay positive and try to make the most of every day.” “My dreams of being a professional footballer were dashed by my brain tumour.” “PigsnThings is one of the things in my day that helps make me smile.” “Promising” survival data from phase III trial of DCVax®-L “The right people at the right time saved our little girl’s life.” “The scenery, from the mountains to the coastal roads, is spectacular, striking, stunning.” Andrew’s TwoWheelsJapan story “The twinges in my hand were signs of a brain tumour”. “There’s a need for greater emotional support!” “There’s no other word for it, her treatment and the side effects were brutal” “We could live again, albeit a different type of life,” says wife after husband’s diagnosis. “We need better treatment options for glioblastoma.” “We need to do more to raise awareness of brain tumour symptoms.” Bal and Jake’s story “We promised Jessica she would never be forgotten.” “We won’t give up and no matter what happens in our DIPG treatment journey will be fundraising going forward.” “What was due to be a walk completed together, became a walk in memory of Nicky.” #WearItOut for Bandanas for Brain Tumours 2016 Why we want to talk about a faster, not an earlier, diagnosis 10 top tips for hosting a Big Bake at your workplace 10 top tips for hosting a Big Bake in your community 10 ways bake sales improve employee engagement 12 ways to boost your wellbeing 12 ways you’ve given the gift of time in 2023 150 Days – Olly Emanuel’s last radio drama 21 days of wellbeing 24 Hours in A&E – a brain tumour diagnosis 29 cyclists take on 525km in 4 days 5-ALA available in Wales by April 5-ALA gets FDA approval 5-ALA the ‘Pink Drink’ – What you need to know 72% of UK adults unable to name a single brain tumour symptom A Bill of Hope: Rare Cancers Bill Passes Committee Stage A bingo night to make mum proud – Guest post by Amy Heald A brain tumour turned mum into a stand-up comic A brilliant baking bonanza: The Big Bake 2021 A chance to say thank you: The Founders’ 25th Anniversary Reception A classical concert celebration with author Sophie Kinsella A day in the life of a Clinical Nurse Specialist A Family Man: Lottie’s advice on coping with loss A genetic mutation causing DMG and a potential drug to treat it A Heady Mix: Author Sophie Kinsella’s classical night for The Brain Tumour Charity A huge thank you to all our fundraisers! A Journey in Rehab: Anya’s Story A mother’s journey through grief and loss A mum’s tribute: Thomas’s story A National Brain Tumour Strategy? It’s A No Brainer! A neurosurgeon’s view A new approach to brain tumour surgery shows improved survival for individuals with high-grade gliomas A new public petition highlights the devastating impact of DIPG A new, non-disruptive brain surgery technology is now being used in London A potential combination treatment targeting glioblastoma A research round-up from Dr Paul Brennan at the University of Edinburgh A response to the UK Government’s position paper on science & innovation A sibling’s story: When Fleur’s sister Grace was diagnosed, her family world fell apart A unique opportunity to engage with our world-leading research A Will to make a difference A Young Ambassador’s lobbying experience A Young Ambassador’s reflections on the first Less Survivable Cancers Awareness Day Absence of protein halts the growth of high-grade gliomas Acc-scare-lerate a cure for brain tumours with Game 34! Acclaimed art project to be made into a book Acclaimed artist Helena Traill’s London exhibition inspired by her father’s terminal diagnosis Acclaimed sell-out show Britney comes to BBC Three ACT NOW study update Advice for employees returning to work Advocating for faster diagnosis of brain tumours in Scotland Aegon announces Charity partnership After 14 years in remission, my brain tumour grew back just before Covid AI beats humans at diagnosing brain cancer from tumour biopsies AI diagnosis: Our latest research funding collaboration Ain’t no mountain high enough for fundraiser diagnosed with brain tumour Alan’s story – Guest post by Alan Palmer Alastair’s Story: Part Four – Best Year of my Life Alastair’s Story: Part One – Crossing a Threshold Alastair’s Story: Part Three – A Battle We’ll Lose Alastair’s Story: Part Two – A robot called Stealth Alcohol abuse drug may hold key to treating aggressive childhood brain tumours Alfie’s story: “I get tired a lot” Alison’s fundraising walk – a year after brain tumour operation caused a stroke All you need is love…and maybe a bit of inspiration All-Party Parliamentary Group on Brain Tumours launches landmark Inquiry report All-Party Parliamentary Group on Brain Tumours meets to break down barriers to a cure All-women’s rowing team take on the Atlantic for charity Amazing Alan hopes to hit £100k target with Boston Marathon run Amazing in-memory fundraising by the Christian White Memorial Fund Amber’s story American federal agency approves new medical device for use in treatment of glioblastoma American research identifies glioblastoma-limiting drug American researchers explore cell enzyme as a potential paediatric brain tumour treatment American researchers trial experimental drugs that may halt brain tumour growth Amy Nuttall is shortlisted for a prestigious Third Sector Award Amy Nuttall to perform ‘Thank You Mother’ at the Smiley Charity Film Awards An AI blood test that could speed up brain tumour diagnosis An evening with our researchers An unexpected journey An update from one of our Future Leaders Junior Fellows An update from Petra Hamerlik, The Brain Tumour Charity’s Chair of Translational Neuro-oncology An update from The Brain Tumour Charity An update on our research into children’s brain tumours Analysis shows Deputax-M is unsuccessful Annie Moody shares why The Relationship Counselling Service is so vital Announcing funding of pioneering glioblastoma research Announcing our award of £3.8 million for five global research initiatives Announcing our co-funding grants with Worldwide Cancer Research Announcing our first funding awards for translational research Announcing our funding of a major new role at The University of Manchester Announcing our latest funding collaboration with Worldwide Cancer Research Announcing our new £3.7m global research investment Announcing our new multi-million pound investment into research Announcing our new patient-led data bank initiative Announcing our new pioneering grants Announcing our partnership with Public Health England Announcing our research partnership investment with CRUK Announcing our second Ask the Researcher event Announcing the appointment of our second Clinical Nurse Specialist for brain tumour patients Announcing the Tessa Jowell Centres of Excellence APPG on Brain Tumours Inquiry starts APPG on Brain Tumours this week Are contraceptives linked to brain tumours? Are we on the brink of a childhood brain tumour breakthrough? Are women being labelled as mentally ill when in fact the cause of their symptoms is potentially more deadly? ARISTOCRAT – a pioneering trial using a cannabinoid-based drug to treat brain tumours Artificial Intelligence – exploring new ways to treat brain tumours Artificial Intelligence improves Brain tumour diagnosis Artist raising funds after losing both brother and husband to brain tumours As a snap general election is called, our battle continues As Casualty back on air with brain tumour storyline – your verdict so far Ask the Researcher night proves a huge success Ask the researcher: Top five things I’ve learnt and why you should go next time August fundraising round up Australia to begin ground-breaking trial in children with brain cancer Autumn Events 2023 round up Awarding the WINDOW Consortium £1.5 million for new research into glioblastoma Aykroyd & Sons’s toughest challenge yet Barcoding brain tumours Baroness Jowell calls for better cancer treatment in House of Lords debate Baroness Jowell changed things for the brain tumour community. Her legacy will live on. BBC Children in Need and St James’s Place Foundation award grants to our support services Be a Star Christmas campaign launches Be part of the NHS Personal Health Budget survey Becoming “Brainbabe”! Sophie’s Story Being a neuro-oncology nurse – Guest Post by Ingela Oberg Being active when living with a brain tumour Being Benign – Callum Ewing’s story Benefit cut equals further hurt for the bereaved Benefits, employment and coronavirus Best Charity Christmas Gifts 2023 Better Safe Than Tumour comes to Holyrood Better services needed for children with life-limiting illnesses Blood test could help to accelerate brain tumour diagnosis Blue Apple Partnership Box of Hugs becomes our most recent corporate partner BRAF mutations in childhood brain tumours Brain cancer drug, PAC-1 is approved for Phase 1(b) Clinical Trials BRAIN MATRIX: Pioneering research to improve treatments for gliomas Brain tumour AI helping others Brain Tumour Awareness Month Brain tumour blogger Angela Conway wins North East charity award Brain tumour dad’s 300-mile cycling team raises nearly £138,000 Brain tumour debate sees Ministers pay tribute to Baroness Tessa Jowell Brain tumour patients continue to report a poorer experience of diagnosis, treatment and care Brain tumour patients denied life-extending drug in ‘postcode lottery’ Brain tumour patients lead the way in global cancer databank Brain tumour surgery: experts call for change to improve survival Brain tumour survivor backs Bournemouth HeadSmart card distribution Brain tumours and employment rights Brain tumours: The hot soap storyline Braving the Shave to raise funds! Breaking down new evidence to support a faster, better diagnosis Breaking news for research into childhood brain tumour growth from our funded researchers Breakthrough in brain tumour liquid biopsy Breakthrough on high grade glioma genetics Brexit: what happens next? BRIAN is making an impact! BRIAN nominated for prestigious Third Sector Award Bristol gallery hosts artist Stony, who died from a brain tumour Bristol pioneers new development in Gamma Knife radiosurgery Britain Against Cancer conference Britney Spears fan who died of brain tumour features in new biography. Broadcaster and presenter Nicki Chapman becomes one of our High Profile Supporters Building connections to better care Building relationships with your child’s school Building Skills, Friendships, and Futures: Highlights from Our Young Ambassadors Big Weekend Cabinet Secretary for Health in Scotland meets to discuss achieving faster brain tumour diagnosis CAI: Innovating to defeat brain tumours Call for routine DNA test to be offered to all cancer patients Calling all home heroes! Cambridge University scientists develop new blood test for childhood cancers including brain tumours Campaign with us to unlock drugs Campaigning for a National Brain Tumour Strategy across three of the devolved nations Campaigning together: pushing for change as Parliament returns Can a brain tumour be secondary cancer? Can a CT scan miss a brain tumour? Canadian researchers discover cell subgroups in treatment of paediatric ATRT brain cancer Canadian scientists develop ‘game-changer’ blood-brain barrier treatment Cancer doctors call for GPs’ increased awareness of chemotherapy effects on teens and young adults Cancer Moonshot 2020 launches brain tumour genome project Cancer patient designs ‘Cancer on board’ badges Cancer registration statistics England released today Cannabis oil – A patient’s right to choose Cannabis-based medicinal products available by special prescription by 1 November Cannabis-derived brain tumour medication shows promise in Phase 2 clinical study CAR-T cell therapy has the potential to treat brain tumours CAR-T cell therapy in brain tumour treatment Carers – looking after yourself at Christmas Carers Week 2015 Caring for my husband is not a burden. But I wish things were different. Caring for someone with a brain tumour during the coronavirus pandemic Carrying hope into Parliament: The Young Ambassador’s mission Casualty actors praise ‘crucial advice’ from The Charity Casualty star, Jason Durr backs The Brain Tumour Charity in memory of Ella Celebrate 25 years of The Brain Tumour Charity with our Founders Celebrate spring with this new homeware! Celebrating our amazing community this Brain Tumour Awareness Month Celebrating our award-winning researchers Celebrating our international partners for International Brain Tumour Awareness Week Celebrating our supporters going the extra mile this BTAM Celebrating our young fundraisers this year! Celebrating the 70th birthday of the NHS Celebrating three years of our free counselling service Celebrating You 2020: a judge’s blog Celebrities line up to support Antiques Roadshow expert Theo Burrell Celebrities unite to back our Great Minds t-shirt campaign Challenge 88: A Challenge for charity like no other Changes to the welfare system and what it means for the community Changes to treatment – Daniel’s story Charity ambassador living with a brain tumour to take on the London marathon Charity Christmas Cards 2023 Charity coalition demands patient experience continues to be measured Charity Investment in Research: AMRC Findings Charity trustees Andy and Tim walk 500 miles in memory of Joseph Charity wedding favours and gifts Childhood Cancer Awareness Month: Billy’s story Childhood Cancer Awareness Month: Xander’s story. Childhood cancer patients in the UK will miss out on access to clinical trials for new treatments Childhood medulloblastoma origin uncovered, opening new doors for treatment Children and Young People Cancer Coalition Children and young people survey extended Children being denied new cancer drugs Children’s literature helps lawyer recover from brain tumour diagnosis and treatment. China joins glioblastoma Australian clinical trial project Chris White MP writes about The Twilight Walk Warwick Christmas activities to do at home Christmas Eve box: What is it and what to fill it with! Claire’s Story – Guest post by Claire Watling Clinical trial using an advanced imaging method could predict sites of glioblastoma tumour progression Clinically aggressive meningiomas linked to single gene Clinicians back Off-patent Drugs Bill Closing the care gap this World Cancer Day Closing the deadly cancer gap: Voices from Less Survivable Cancers Awareness Day Collaborating for change at the NICE conference 2023 Collaborating in Scotland to accelerate a cure for brain tumours Collaboration is key Combination therapy could significantly improve glioblastoma survival rates Combination therapy to treat medulloblastoma Coming together to accelerate change! Committed to funding world-class research into brain tumours Comparing the Party Manifestos Computer games can build memory skills and a sharper mind – could they help brain tumour patients? Connor, 22, takes on tough challenge to raise funds Consortium to build sustainable pipeline of trials for new brain tumour therapies Continuing Joss’ legacy- a month of challenges in a day Convection enhanced delivery of a water insoluble drug shows early promise in targeting high grade brain tumours Coping at Christmas Coping with change and uncertainty Coping with life following a brain tumour diagnosis Coronavirus (COVID-19) and brain tumours Could the polio virus help treat brain cancer? Could the Zika virus be used to treat glioblastomas? Couple find love after pioneering proton beam therapy Couple return from trip of a lifetime to shock brain tumour diagnosis. COVID-19 test costs for families travelling abroad for treatment Covid-19: How has it impacted our community and what our support services are doing to help Cross-party support for a National Brain Tumour Strategy as we hand in our open letter to the government! Cycling for charity: Brothers do London to Riga in memory of dad Cycling Ride London for The Brain Tumour Charity – Lizzy’s story Dabrafenib and trametinib – a new treatment on the horizon? Dabrafenib and trametinib – NICE guidance published Dabrafenib and trametinib approved to treat childhood gliomas Dad with terminal brain tumour says losing driving licence was toughest part. Dad’s pedal power following his daughter’s brain tumour diagnosis. Dad’s tumour recurs as family prepare for daughter to be born. Daily life in the school holidays Dan takes on unique challenge in memory of mum Data access vital for NHS digital revolution Data is critical Data sharing discussion at the Labour Party conference Daughter diagnosed with brain tumour after losing her mum to the disease. Daughter says loss of mum inspired her to become a teacher. Daughter takes on the knife edge of Snowdon in memory of her mum Day one at Conservative Party conference Day three at the 2018 Labour Party annual conference Day two at the 2018 Labour Party annual conference Deadline closes for our latest research funding calls Debate is key at the Conservative Party Conference Defeating Brain Tumours: Our New Strategy 2015-2020 Defining the origin of medulloblastomas Deliciously Ella backs our ambitious work as one of our High Profile Supporters Delivering equal access to benefits for brain tumour patients Delivering the Less Survivable Cancers Taskforce petition to 10 Downing Street Developing a Vaccine to Treat Diffuse Midline Glioma Development of a new blood test for GPs to accelerate early diagnosis. Developments for the European Medicines Agency Developments in cannabis-based drug trial for glioblastomas Diageo dinner in memory of much-loved colleague Diagnosis and treatment during the coronavirus pandemic Diamonds used to identify cancerous tumour cells Different cell types work together to drive tumour spread in paediatric high-grade gliomas Discover Adventure on our Iceland Trek 2017 Discovering how atypical teratoid rhabdoid tumours (ATRTs) are different Discovery raises hope of slowing high-grade brain tumour growth DNA ‘flags’ could change children’s brain tumour treatments, say researchers Doctors blamed brain tumour symptoms on too much drink and sunstroke Doctors hail our brain tumour information for schools Doctors kept asking if I was pregnant…but I had a brain tumour Doctors should order fewer ‘inappropriate’ diagnostic tests Doctors told me my squeaky voice was delayed puberty – but I was really battling a brain tumour Does your sex matter when you have a glioblastoma? Dordaviprone – springs of hope, but a long way to go Double your donation to double your impact: Matthew’s story Dr Michele Afif appointed CEO at The Brain Tumour Charity Dr Simon Newman joins The Brain Tumour Charity Driving and brain tumours Driving change across the UK Driving change in Scotland Driving down diagnosis times in Scotland Driving forward Tessa’s legacy: mission celebrates progress and plans Dying well – Improving end-of-life care for brain tumour patients Dylan’s story Earl Spencer – Why I support The Brain Tumour Charity Early Day Motion submitted honouring Laura Nuttall Early findings from a phase 3 clinical trial report promising results Early warning sign of aggressive brain tumours could help tailor treatment Ed Kerry’s epic challenge in memory of his sister Edinburgh research discovers new relationship between immune and glioblastoma cells Elena Hardy, a ballet dancer and mum of two, warns of the risks of ignoring brain tumour symptoms Emergency diagnosis more likely for brain tumour patients Emily Oliver’s Fighting Fund donates towards pioneering DIPG research Emma M’s story Emmerdale’s Moira reveals brain tumour diagnosis Enabling Faster, Better Diagnosis: The Scottish Steering Committee’s Renewed Commitment Encouraging results for new clinical approach to glioblastoma treatments Encouraging the brightest minds to study brain tumours English Cancer Patient Experience Survey published Enjoy a long weekend your way Enzyme inhibitor shows promise for diffuse midline gliomas Everest In The Alps 2019: Six reasons why… Everest in the Alps challenge set to raise £1million Everest in the Alps presents a mountainous training challenge for Phil Spencer Everest in the Alps: The height of fundraising Evolution Coaching becomes our longest standing partner Ewan and Kerrie’s story Ex- England Rugby Captain Lewis Moody to join families at Gloucestershire Family Day Ex-Facebook President Sean Parker pledges $250million to research immunotherapy for cancer treatment Exciting new partnership with Make a Will Online Exclusive support from The Wanted 2.0 Exclusive: “Ric’s storyline gives me respect for people living with the reality of a brain tumour” Expanding Theories Funding Announcement! Expanding Theories: Meet our latest awardees Experience research into brain tumours hands-on Experts call for innovation for research into brain tumours Experts deliver glowing verdict as we work towards defeating brain tumours Exploiting metabolic pathways used by glioblastoma cells to halt tumour growth Exploring GP Access to Brain Scans Exploring the results of the Cancer Patient Experience Survey 2022 Exploring the role of the blood-brain barrier in advancing brain tumour treatments Extreme Fundraising for a cure Falling out of bed saved my little girl’s life Family blighted by son’s undiagnosed brain tumour. Family celebrates medication milestone Family fundraising for answers to why their daughter died. Family live by dad’s life lessons after shock diagnosis and loss. Family looking forward to Christmas as daughter rings bell after treatment. Family share how they are coping with dad’s incurable brain tumour. Family supported by The Brain Tumour Charity to star in Children in Need special Fantastic Father’s Day Charity Gifts! February 4 is World Cancer Day. This is Kyle and Vicky’s Story. February 4th is World Cancer Day. This is Matthew’s story. Fergus and Fin’s London to Paris Cycle Finding kinder and more targeted ways to treat medulloblastoma Finding love has made me feel like a woman, not just a cancer patient Finding new drugs for treating glioblastoma Finding the right words First Dates love is helping me cope with my mum’s brain tumour heartache First stage of Addenbrooke’s trials of glioblastoma ‘pink drink’ research nears completion Fitness clothing for 2024 Fitness fan fundraises following shock diagnosis. Five reasons to take advantage of our free Will writing partnerships Floor & Wall Ltd tee off to help us defeat brain tumours Focused ultrasound shows early promise in glioblastoma brain tumours Footballer & Sky Sports broadcaster Dominic Matteo becomes one of our High Profile Supporters For Laura – Guest post by Hannah Kinsell Former England Rugby Captain Lewis Moody heads up South Pole expedition Four fab recipes to try for The Big Bake 2021 Four Seasons Hotel Hampshire raises over £11,000 French neurosurgeons use Virtual Reality to map brain tumour during surgery Friends take on Thames Bridges Trek for The Brain Tumour Charity Fuelling discovery: our latest Expanding Theories grant awardees Funding for state-of-the-art research into new brain tumour treatments begins Fundraiser runs 1,000 miles in memory of her mum Fundraiser sets out on 20 Walks Challenge – to mark 20 years since his brain tumour diagnosis Fundraising during lockdown: Andy’s story Fundraising success for university student supporting his friends with brain tumours. Fundraising: the good, the bad and the difficult… Further research needed to identify possible warning signs of a brain tumour Future Leader presents her work at the world’s largest neuro-oncology conference Future Leader Spotlight: Dr Ángel Álvarez-Prado Future Leaders funding announcement Future Leaders: Junior Fellowship Funding Announcement Gabby Allen opens her heart about her “funny, caring” dad losing his life to a brain tumour Gathering insights on potential barriers to innovation GBM diagnosis inspires innovative patient support strategy Gene therapy to treat recurrent high-grade gliomas gets accelerated to Phase 3 clinical trials Gene-editing techniques give new insight on key protein involved in medulloblastoma development General Election 2017 result: No overall majority as Labour make unexpected gains Genetically-modified polio virus used in trials treating glioblastoma Genomics England are now recruiting brain tumour participants Get ready for the summer holidays with our new partner – Currensea Get set for 2020 Get your chemotherapy questions answered at our virtual Q&A Get your free bandana on…but not as you know it Getting radical with the brain tumour community! Gifts in Wills, a (not so) tricky conversation Giving the Brain Tumour Community a Voice in Research Glasgow’s £32m Imaging Centre of Excellence has now opened Glioblastoma Awareness Day – Oliver’s Story GM algae holds potential breakthrough in treating brain tumours Google’s DeepMind AI division to analyse brain tumour scans Government announcement on Personal Independence Payment (PIP) Government bailout and support for charities Government funding for research into brain tumours Government publishes formal response to calls for more spending on research into brain tumours Government ramps up Brexit negotiations as uncertainties remain Government recommendations for the cancer registry data Grab this gear for Snowdon by Night 2023! Grab those controllers, it’s Game Over for Brain Tumours Grace’s vlog: documenting life with a brain tumour Graham Norton appointed as our Interim CEO Grandmother launches Westminster petition calling for more research into DIPG Grandmother’s petition for research reaches milestone 100,000 Great minds come together for new charity t-shirt collection Grieving family raise more than £200,000 for high-grade research. Grieving sister fundraising to find a cure for brain tumours. Ground-breaking research technique to assess the aggressiveness of childhood brain tumours Groundbreaking clinical trial announced today in honour of Tessa Jowell Guy’s Hospital opens ‘world-class’ cancer centre in London Hal Cruttenden stars in our Big Bandana Bake launch campaign Hal Cruttenden treks the Sahara for charity! Hal raises dough for research Half-marathon swim in support of friend’s brain tumour battle Halting the ‘immortality’ mechanism in glioblastomas Halve the harm! Harnessing AI to help diagnose brain tumours Harry Smith wins JustGiving Young Fundraiser of the Year! Headeast Vietnam cycle challenge battle first day typhoon Headline Findings from the Cancer Patient Experience Survey 2021 HeadSmart “a model” for awareness campaigns in low-survival cancers HeadSmart campaign launches new website and drive to further reduce childhood brain tumour diagnosis times Headsmart is going global HeadSmart wins National Lottery Award Healthcare agency chooses The Brain Tumour Charity as their Team Charity for 2016 Helen takes on a triathlon for her 60th birthday! Helping love blossom: relationship tips when living with a brain tumour Helping someone with speech and communication difficulties Hertfordshire dad takes on 100km race in daughter’s memory Highlighting the importance of a faster diagnosis in Scotland History of the Twilight walk Holding the government to account on behalf of the ‘extremely vulnerable’ Holidays and breaks for families with a brain tumour Holly Matthews’ daughters terrified she’ll contract Covid-19 and ‘die like Daddy’ Holly’s story Hope for Ollie following fundraising campaign How a fitness professional living with a brain tumour is uniting our community How a psychological therapy changed my life How a rabbit virus can work against brain tumour cells How a routine eye test can help Tackle Brain Tumours How are scientists working to improve brain tumour diagnosis? How being a Young Ambassador changed my life! How can charities support a transformation of patient care through data? How can we cut delays to brain tumour diagnosis? Dr Paul Brennan How coronavirus is affecting treatment How fatigue can affect you and tips for coping with fatigue How has DevoManc affected The Brain Tumour Charity? How keeping calm and positive has helped me to cope with my brain tumour diagnosis How long does it take to get diagnosed? How The Brain Tumour Charity’s project, BRIAN, is leading a data revolution How the CRUK manifesto affects the brain tumour community How the deadly Lassa and Ebola viruses could help destroy brain tumour cells How to apply for your free bus pass How we spend your money – a question of choice How we’re fighting for people affected by brain tumours Hugo’s Story for Eye Health Week: An eye test led to my brain tumour diagnosis Husband and dad shares the acute pain of losing his beloved wife to a brain tumour. Husband and dad turns radiotherapy mask into unique artwork. I refuse to let my incurable brain cancer define me I set up a jewellery company in memory of my boyfriend who died from a brain tumour I thought I was suffering with exam stress… but I had a brain tumour I was in Ravi’s Dream Team Choir! Identifying markers to classify previously undetermined glioblastomas Immunotherapy and gene therapy double attack against glioblastoma shows therapeutic potential Immunotherapy before surgery for recurring glioblastoma Implementing the NHS Long Term Plan Improving diagnoses through a tumour’s molecular profile Improving immunotherapy for brain tumours Improving patient experience is our priority In remission – those precious words. Inspiration and ideas for your Game 34 challenge International Nurses Day: The call for greater Holistic Needs Assessments provision Internationally bestselling author Sophie Kinsella’s live events Interview with co-founder of Black in Cancer, Sigourney Bell – part one. Interview with co-founder of Black in Cancer, Sigourney Bell – part two. Introducing Hope: The Sockette puppet for charity Introducing manifestos for Scotland, Wales and Northern Ireland Introducing our latest animation: My Brother has a Brain Tumour Involvement Champion Attends the All Party Parliamentary Group on Cancer IOTA Pharmaceuticals announce the creation of a Glioblastoma Drug Bank Is anti-angiogenic therapy to treat glioblastomas a viable option? Is it time for the UK to have the right to try? Is palliative care effective enough? We ask for your experiences Is the EAMS failing patients? It’s good to talk – launching our new counselling service Italian court rules that mobile phones cause brain tumours Jack Morris CBE appointed chair of trustees Jess Mills, daughter of the late Tessa Jowell, is driving change for all those diagnosed with brain tumours Jessica Matteo opens her heart about how former footballer Dom’s brain cancer diagnosis has affected their lives. Joining in to co-create a strategy for the future Joining the UK Health Data Research Alliance Joint letter asks Government to prioritise cancer in Brexit negotiations Jon’s Amazon Survival Blog Josh’s story Journey across the Atlantic helping to drive earlier diagnosis Julie’s story Julien Baptiste in the BBC One drama The Missing, sheds light on effects of a brain tumour diagnosis June 8th is World Brain Tumour Day. Last June, Kimberley found out she had a brain tumour. This is her story. Keeping cool in the heat Keeping Up Momentum in Scotland Key biomarker for aggressive meningiomas identified by researchers Key takeaways from the Conservative manifesto launch 2024 Key takeaways from the Conservative Party conference Key takeaways from the Labour manifesto launch 2024 Key takeaways from the Labour Party Annual Conference and what they could mean for the brain tumour community Key takeaways from the Labour Party Conference 2024 Key takeaways from the Liberal Democrat manifesto launch 2024 King’s College Hospital trials Virtual Reality MRI scanner app to help patients Kings College Hospital appoints our first Clinical Nurse Specialist Landmark study transforms our understanding of meningiomas Latest developments discussed at our second Ask the Researcher event Latest figures reveal where people live could influence cancer diagnosis times Launch of The Big Bake Launch of the first ever Less Survivable Cancers Awareness Day Launch of The Less Survivable Cancers Taskforce petition Launching our ‘Businesses Against Brain Tumours’ campaign Launching our ‘Restart Research’ appeal as part of The Big Give Launching our 2017 Christmas Appeal Launching our Big Bandana Bake Launching our data-sharing project in quest for brain tumour cure Launching our Employment Resources for patients Launching our Iceland 2017 fundraising trek Launching our Improving Brain Tumour Care surveys Launching our Live Chat service Launching our Manifesto for Scotland ahead of the May Parliament elections Launching our new Fighting for Faster Diagnosis report Launching our new gift in Wills campaign Launching our new signs and symptoms campaign Launching our Snapchat symptom awareness campaign Launching our Winter Appeal 2019 Launching our world-first patient Databank Launching our Young Adult Service Launching The Big Bake to raise vital funds to defeat brain tumours Launching The Everest Centre for research into childhood brain tumours Launching the new ‘A Cure Can’t Wait’ collection celebrating the superheroes of our community Launching The Twilight Walk – this year it’s virtual! Launching The Twilight Walk 2019 Launching The Twilight Walks 2016 Laura, our Young Ambassador, attends the APPG Laying the foundations for more effective brain tumour treatments Leave nothing unsaid by leaving a gift in your Will Less Survivable Cancer Taskforce doubling survivable statement Less Survivable Cancer Taskforce report calls for urgent action on faster diagnosis Less Survivable Cancers Awareness Day Let’s Talk Parliament with Jeremy and Victoria Lewis Moody is taking on extreme cycle challenge to raise funds for childhood early diagnosis Lewis Moody’s team heads to the South Pole for the final HeadsUp challenge Lewis Moody’s Top Tips to Beat the Bath Half Life after shielding Life changing new partnership Life in lockdown Life in the Lab – Amie’s research experience Life with my brain tumour warrior Life-changing treatment means Zac lives a relatively normal life Lifestyle coaching may help reduce fatigue and improve mental health for those with a brain tumour. Liquid Biopsy for GBM- one step closer Liquid biopsy to detect brain tumour biomarkers Listen to our High Profile Supporter Hal Cruttenden’s podcast Living with a brain tumour inspired Anna to write Little Nipper to the Rescue Living with a pilocytic astrocytoma – Jerome’s story London Landmarks Half Marathon 2025 – spotlight on two of our runners! London Marathon look back – Camilla’s Story London sees the opening of Europe’s biggest biomedical laboratory Looking after yourself at Christmas Looking to our Future Leaders Loose Women and Benidorm star Sherrie Hewson opens her heart about brother’s brain cancer diagnosis Losing My Place: The Reality of Childhood with a Brain Tumour published today Losing Myself report reveals the hardship and isolation faced by brain tumour patients Louise’s story: My children’s daddy lives on through them Love is in the air for our Young Adults community M&C Saatchi announces Charity partnership Madelaine’s Big Bake Memories – Guest post by Madelaine Powell Maintaining momentum: A busy week of campaigning activity and actions Maintaining the access to medicines since Brexit Majestic partners with The Brain Tumour Charity as Charity of the Year Major UK trial to assess whether cannabis-based drug could extend life for thousands with aggressive brain tumours Make a difference and leave a gift in your Will Make losing a loved one count and how we can help Making a splash for BTAM: Tom Daley’s story of support Making music from MRI scans Making Progress on all fronts: an update on our strategy Making the case for more Clinical Nurse Specialists Man living with a brain tumour taking on the London Marathon Managing fatigue during the holidays Managing life with a brain tumour during lockdown Managing my memory- Insight and top tips from our young ambassador, Rebecca. Managing relationships after a brain tumour diagnosis Many NHS MRI machines are out of date according to a recent report Mapping glioblastoma spread for more effective treatments Marking the first Less Survivable Cancers Awareness Week Martino Sclavi talks about how his diagnosis left him unable to read but inspired his first book Martino was an inspiration to everyone in our community Matt McBriar from Bicep brain tumour update Matthew’s Story Me and my Oligo Medulloblastoma drug effect only seen with molecular profiling Meet Dr Martina Finetti Meet our London Marathon runners – Claire’s story Meet our London Marathon runners – Nina’s story Meet Rosemary this Volunteers Week Meet the Devon mother and daughter duo stepping out for a Cure Meet the new Chair of the Scottish Steering Committee Meet the researcher: Ally Rooney Meet the volunteers collaborating with us to accelerate change Meet three of the runners taking on the Berlin Marathon for brain tumours Meeting the Cabinet Secretary with the Less Survivable Cancers Taskforce Men’s health week: Empowering men to prioritise their health Mental health and growing up after losing a loved one to a brain tumour – Guest post by Ed Ryan Michael’s 12 Hour Cycle Challenge Microsoft’s cancer defeating plans with ‘smart’ molecular systems Millie’s blog – experiences of growing up with a parent who has a brain tumour diagnosis Molecular profiles show up clinical trial benefits Molly’s Story Money-saving tips for Christmas Monitoring diffuse midline gliomas with liquid biopsies More people have walked on the moon! More than two million in backlog for cancer care MotorMouth hosts racing superstars for charity karting event Motorsport community platform teams up with The Brain Tumour Charity MPs to debate brain tumour petition report MSP to chair discussion on brain tumours in Scottish Parliament MSPs call for action in debate on brain tumours MSPs to debate need for greater awareness of brain tumours in Scottish Parliament Mum desperate to know what type of brain tumour daughter has. Mum diagnosed with brain tumour after a routine eye test. Mum diagnosed with brain tumour after visiting optician supports our campaign. Mum diagnosed with brain tumour is putting her best foot forward. Mum diagnosed with recurrence of teenage brain tumour whilst she was pregnant. Mum fundraising after brain tumour nearly took her sight. Mum living with brain tumour to climb Kilimanjaro Mum recognised signs of her brain tumour on ‘First Dates’. Mum takes on inclusive new Conquer the Steps challenge just three months after brain surgery Mum teaches young son what to do when she has a seizure Mum thanks HeadSmart after son’s brain tumour diagnosis Mum with undiagnosed brain tumour learns Mandarin Mummy Has a Lump helps parents talk to children about cancer Mums of team Ocean Valour share their messages My benefits experience My bucket list is creating magical memories for my kids My dad’s terminal brain tumour inspired me to become an entrepreneur My first Young Adults Meet Up My inspiration to climb Mount Kilimanjaro for The Lewis Moody Foundation My journey as a Young Ambassador – Guest post by Lauren Nicholls My mother had a terminal brain tumour. Who could possibly understand? Nanoswimmers could be used to transport drugs past the blood brain barrier Nanotechnology could help understand how glioblastomas respond to treatment Nathan and Hailey’s Story National action plan for neurological conditions in Scotland National Bereaved Parents Day: Eva’s story National Cancer Patient Experience Survey (NCPES) National Cancer Patient Experience Survey for England 2018 results are out today National Cancer Plan: Targeting the challenge National research funding announced for brain tumours Navigating the path unknown –James’ story. Neal and Sara’s story New ‘gel’ device lures aggressive brain tumour cells out New article explains why long-term survivors of childhood cancers develop meningiomas New biomarker could improve the diagnosis of diffuse gliomas New breakthrough into Medulloblastoma New Cancer Research statistics on fast and simple diagnosis New charity partnership pledges £100,000 in memory of their son New device ‘extends survival’ for glioblastoma patients, trial finds New drug demonstrates the ability to cross the blood-brain barrier New drug discovered that could prevent the spread of glioblastoma cells New figures show improvement in brain tumour survival New figures show increase of research funding for brain tumours New gene therapy could have potential to treat recurrent glioblastomas New genetic test offers hope of more effective childhood cancer treatments New glioblastoma and anaplastic astrocytoma book New glioblastoma imaging shows how tumour cells respond to treatment New guidance for prescription of medicinal cannabis but access is limited New imaging technique for cancer drugs trialled in the UK New insight into medulloblastoma New insights may improve treatment for meningiomas New Less Survivable Cancers Taskforce report released today New MRI scans help monitor slow-growing tumours and guide treatment New NICE guideline on brain tumours New phase 2 clinical trial testing immunotherapy drug announced New report on research and leaving the EU New report shows that paediatric brain cancer now more deadly than childhood leukemia in the US New research allows neurosurgeons to ‘see’ glioblastoma tumour cells New research funding to improve quality of life New research shows benefits of precision medicine in treating brain tumours in children New research uncovers a molecule that halts DIPG tumour growth New Scottish guidelines aim to speed up brain tumour diagnosis New study suggests magnetic seeds could be used to heat and kill cancer New subgroups identified for high-grade gliomas in children New Tessa Jowell Brain Cancer Mission report New Tessa Jowell Centres of Excellence announced New test could provide molecular diagnosis of a brain tumour in as little as two hours New treatments for brain tumours: we need to think differently – Prof. Susan Short New treatments for diffuse midline gliomas New UCL study finds university graduates more prone to brain tumours New Welsh cancer statistics demonstrate the urgent need for more progress New Zealand tech firm produce virtual reality cancer immunotherapy visualisation Newcastle family to complete their “Walk to Disney” challenge Newcastle scientists hail new understanding of glioma cell growth NHS England publish their Long-Term Workforce Plan NHS England to double pioneering form of robotic radiosurgery NHS launch ‘NHS App’ in GP Practices across England NHS proton beam centres aim to treat a “game-changing” 1,500 patients a year NICE publish disappointing draft guidance on cannabis-based medicinal products NICE release a new Quality Standard for cancer referral Nicki Chapman launches her music industry memoire Nicki Chapman talks about her brain tumour diagnosis Nickie Aiken shares her brain tumour experience Nine brain tumour centres awarded Centre of Excellence status Nivolumab fails to meet its target Nivolumab immunotherapy drug shows lack of promise in Phase 3 clinical trial for glioblastoma patients No mountain high enough after dad diagnosed with incurable brain tumour. No one can fill the gap left by our son, but our baby has brought joy back into our lives Northern Ireland’s first nationwide survey into cancer patient experience is published Northwich Woodland Walk Ocean5 crew bids for Pacific world record Off-patent Drugs Bill blocked at House of Commons Ok to Ask about clinical research Oliver’s story Ollie’s challenge On the path to wellness: how walking helps you and others! One Cancer Voice seeks Government clarity on cancer commitments in the Spending Review One Cancer Voice sets out 10 tests for the new 10-year cancer plan One Song Per Cycle – Josh’s Story One striking sculpture auction, two friends connected by The Brain Tumour Charity Open letter from NHS, charity and community leaders to people with a weakened immune system Our 10-year-old supporter Amelia Gebruers wins a Pride of Britain Award Our ambitions exceed those of Cancer Research UK Our benefits clinic is transforming Our Celebrating You 2023 award winners Our co-funded study could see babies with brain cancer “spared chemotherapy”. Our corporate partners unite to tackle brain tumours Our favourite Big Bake recipes – Deliciously Ella’s Apricot and Coconut Bites Our favourite Big Bake recipes – Harriet’s Chicken, Mushroom and Leek Plait! Our favourite Big Bake recipes – Lizzie’s Raspberry Cupcakes! Our founders win global recognition for charity achievement Our founders, Neil and Angela Dickson, launch supporter fund in memory of their daughter, Samantha Our free research webinars bring the research community together in lockdown. Our funded research shows blood-brain barrier success Our High Profile Supporter Amy Nuttall stars in Beetlejuice Beetlejuice Our High Profile Supporter Hal Cruttenden will host our Celebrating You Awards 2018 Our High Profile Supporter, actress Amy Nuttall, releases a Mother’s Day song, ‘Thank You Mother’ Our interview with Dr Tom Millner: Understanding Epigenetics in Glioblastoma Our meeting with the DVLA and the changes announced Our meeting with the Less Survivable Cancers Taskforce Our new High Profile Supporter, Amy Nuttall Our new high-profile influencer, Jake Devline-Reed Our new multi-million pound research investment Our new research partnership with the Structural Genomics Consortium Our open letter reaches 40,000 signatures in less than four weeks! Our partnership with BECG Our partnership with Wickes begins with a bang! Our Patient Guide to Brain Tumour Treatment and Services launches today Our petition reaches Downing Street Our Policy teams New Year’s resolutions Our Relationship Support Service is helping relationships thrive Our Research Highlights of 2024 Our research highlights the financial implications of a brain tumour diagnosis Our research reveals potential new drug to target rare childhood brain tumour Our research update into glioblastoma, adaptive trials, and the ‘pink drink’ Our researchers develop new test to assess drugs to tackle childhood brain tumours Our response to new Independent Cancer Taskforce report Our response to the Accelerated Access Review Our response to The Life Sciences Industrial Strategy Our Snapchat symptom campaign success continues Our submission to the National Cancer Plan consultation Our support for the #OneCancerVoice 12-point plan for restoring cancer services Our Time Art Exhibition: a wrap up Our trustee Berrie and her husband Graham, are taking part in The Twilight Walk in October Our UK-wide report highlights the financial consequences of a brain tumour diagnosis Our Wickes partnership won a Third Sector Award! Our work with House of Lords Select Committee on Charities Our work with Seth Smile in Uganda Our Young Ambassador Tyler is awarded the British Empire Medal by Lord-Lieutenant of West Sussex Our Young Ambassadors take over BBC Radio 2! Outpatient appointments – what to bring and how to prepare Ovarian cancer drug olaparib has the potential to treat glioblastoma Owain’s story: I couldn’t have played Glen without the charity Paediatric Brain Tumour Information Day Parental Bereavement (Leave and Pay) Bill – a start, but not yet enough Parental Bereavement (Leave and Pay) Bill passes final Parliamentary hurdle Parents mark £10,000 fundraising milestone after loss of son, Khushil, to a brain tumour Parents of boy who died from a brain tumour create videogame experience Partners in crime: When patients become partners in research Patient choice: Should patients have more freedom to choose? Patient questionnaires could flag learning difficulties in children treated for a brain tumour Patients ‘struggle to access key information’ as NHS staff shortages bite, says report Patients struggling to access cannabis-based medicine via prescription, report finds Paul Nicholson wins Healthcare Volunteer of the Year award Paul’s epic coastal walk to remember his dad Paying it forward Pedalling for a Purpose: Newlyweds on Epic Cycle from Australia to UK Pedalling to defeat brain tumours Pedalling towards a cure Pencil-beam scanning proton therapy could spare memory and cognitive function in children Personalising treatments for children with medulloblastomas Perthshire hosts Family Day for brain tumour families Petitions Committee report on research funding for brain tumours debated in House of Commons Phase 2 trial of cannabis-based drug in glioblastomas to open in summer 2022 Phil Spencer joins the third ascent of Everest In The Alps Phil Spencer takes on the second Everest in the Alps challenge Phil Spencer takes on third Everest In The Alps Phil Spencer’s Everest in the Alps blog Philippa Forrester becomes our High Profile Supporter championing HeadSmart Picking up the pace of meningioma research Pioneering fundraising as we head in to 2018 Pioneering new cancer vaccine planned in England Pioneering research reveals new genetic errors that lead to an inherited risk of developing glioma Plans to allow NHS-approved health apps to feed patients’ data into health records Policy blog: Day two at Conservative Party conference Positive results from a drug treating recurrent glioblastoma Post APPG Brexit Potential new paediatric glioma treatment on the horizon Predicting the risk of meningioma recurrence Preparations for Everest In The Alps 2020 enter final stages Preparing for the roundtable with the Scottish Government’s Cancer Policy Team President Obama appoints world-renown brain tumour professor to US National Cancer Advisory Board Pressure for government response to funding research into brain tumours gathers momentum Prestwick Twilight Walk will unite the community Professor Richard Gilbertson is our new Chair of the Grant Review and Monitoring committee Promising developments for paediatric low grade glioma drug Protein discovery could lead to more effective treatment Proton Beam construction underway at University College London Hospital Proud to be part of the launch of Less Survivable Cancers Taskforce Providing comfort to families affected by a brain tumour diagnosis Public Health England blog outlines the vital importance of collecting cancer patient data Q&A with Dr Paul Brennan Q&A with Professor Richard Gilbertson Quest for Cures funding announcement Quest for Cures funding announcement Raising awareness of DIPGs in Westminster Raising issues at the All-Party Parliamentary Group on Brain Tumours Raising the importance of Faster Diagnosis in Westminster Raising the profile of brain tumours with the Scottish Government Random act of kindness results in donation! Rare Cancers Bill: How you can make a difference Ravi’s Dream hits £81,000 after a star-studded charity football match Recent developments of our Leeds-based research into brain tumour treatment Record numbers take part in our 2016 Twilight Walks Record-breaking rower pays tribute to team Ocean Valour Red Herring – an award-winning documentary. Redefining medulloblastoma Remembering Laura Nuttall Remembering Tessa Jowell, one year on Remembering the wonderful Tom Parker Remembering Tom Reporting from the American Society of Clinical Oncology (ASCO) Reporting from the British Neuro-Oncology Society Repurposing a multiple sclerosis drug to treat glioblastomas Research at risk Research developments in 2016: what the experts think Research initiatives totalling £4.3m announced today by The Brain Tumour Charity Research into brain tumours: why money isn’t everything Research reveals new therapeutic target to treat brain cancer Research work placement at UCL Researcher inspires charity partner to donate £30,000 in memory of their son Researchers develop a ‘laboratory on chip’ device to detect cancerous stem cells Researchers develop a new ‘liquid biopsy’ blood test to accurately diagnose certain types of primary brain tumour Researchers develop a probe that helps detect cancers cells with almost 100% accuracy Researchers discover a new target for immunotherapy Researchers discover a potential mechanism for glioma recurrence Researchers find that ultrasound may help get drugs across the blood-brain barrier Researchers from the University of Ohio have found changes in blood that are detectable five years before the diagnosis of brain cancer Researchers hail ‘staggering’ increase in low-grade glioma survival thanks to earlier surgery Researchers identify a protein that could help prevent glioblastoma spreading Researchers identify genes that can drive development of brain tumours Returning to work after a loved one is diagnosed with a brain tumour Returning to work or education after receiving a brain tumour diagnosis Review of Informed Choice released Revising for and sitting exams when living with a brain tumour Revolutionary new smart-needle could transform neurosurgery Rhiannon’s story for Eye Health Week: An eye test led to my brain tumour diagnosis Rishi Sunak supports North Yorkshire family’s Twilight Walk Rob Walker’s Absent Friends Tour Rowing into the record books Royal Parks Half Marathon – Good Luck to our Runners! Rugby legend Lewis Moody heads up the headwest Costa Rica coast-to-coast challenge Running gear to get set for the London Marathon! Russell Watson becomes one of our High Profile Supporters Saddle up for Mark’s Mission! Sainsbury’s celebrates charity partnership Sally Bramall from Lizzie’s Fund nominated for prestigious award for fundraising in memory of her daughter Sarah’s Christmas story Scientific conferences, why do we go? Scientists at the Everest Centre to transform treatments for childhood brain tumours Scientists discover a chemical that can kill glioblastoma cells Scientists discover enzyme that supports brain tumour growth Scientists find unlikely ally in Salmonella to target brain tumour cells Scientists further their understanding of how glioma cells adapt and thrive Scientists have discovered a protein that could potentially predict glioblastoma outcomes Scientists have discovered that a lack of ‘editing’ could be driving the most aggressive brain tumours Scientists join forces to transform treatments for childhood brain tumours Scotland sees installation of cutting-edge MRI technology Scots fundraiser hits his £100,000 target Scottish Cancer Strategy: What is it and what does it mean for us? Scottish council first in the UK to adopt charity’s brain tumour symptom campaign Scottish Parliament brain tumour roundtable Seven fun and easy games to help children with language difficulties Seven mums take on the challenge of scaling the height of Everest on skiis in just four days Seven ways that talking about your brain tumour diagnosis can help! Seven-Year-Old’s Hit Single Gets Serious Celebrity Buzz Shaping tomorrow: Future Leaders in focus Sharing our work on a global stage Sheffield Children’s Hospital pioneers new ‘sat nav’ of the brain to map tumours Sheffield scientists take on Sheffield 10K to raise money Shepherd Neame Announces Charity Partnership Shifting the dial on inclusion in medical research Shining a light on our paediatric Family Led Charity partners! Shining a light on the differences between glioblastoma cells Shona Floyd on her daughter Tasha’s brain donation to further help research into DIPG Should it be a luxury to have a clinical nurse specialist? Signalling pathway regulates Group 3 medulloblastomas Simon Kindleysides becomes the world’s first paralysed man to complete the London Marathon Simon Kindleysides, a paralysed dad of three, to take on the London Marathon in an exo-suit Simon’s diagnosis story Simple cake recipes from the community Six things you didn’t know BRIAN could help you with Six tips for festive well-being Six ways to remove the barriers to research participation Sky is the limit for daughter who lost her mum to a brain tumour Sky’s the limit for family fundraising to remember beloved mum Skydive Weekend – meet two of our team! Society for Neuro-Oncology annual meeting (part one) Society for Neuro-Oncology annual meeting (part two) Something’s changing South Shields mum plans charity walk in memory of her mother Speech and Cognition problems: Oliver’s Story Speeding up brain tumour diagnosis through the Cancer Tech Accelerator Spotlight on London Marathon Runners Spotlight on new Supporter Group, The Angus James Gibson Trust Spotlight on our London Marathon 2024 Runners Spotlight on our London Marathon 2025 Runners Spotlight on Supporter Group, Firth’s Fundraisers Spotlight on supporter group, Kirsty’s Crusaders Spring fundraising ideas to top up your The Twilight Walk London fundraising St Andrews Fashion Show teams up with The Brain Tumour Charity Stadium to Stadium- The Matthew Smith Fund Standing together with the Less Survivable Cancers Taskforce STELLAR clinical trial now recruiting brain tumour patients Stem cells are teaching us about glioblastoma Steps being taken to address the NHS nursing shortage Story of hope: Alice and Emma Study reveals cancer therapy can also drive tumour regrowth Support at school Support for brain tumours: why we need to get personal Support for our BRIAN online app increases Supporter Group, Maynards, raise close to £40k with fundraising Bluebell Walk! Supporter with brain tumour highlights importance of having symptoms checked. Supporting a partner with a brain tumour – Kieran and Abbie’s story Supporting awareness during National Eye Health Week Supporting children with anxiety and stress Supporting children with changes in vision Supporting Davina McCall’s diagnosis Supporting the Scottish brain tumour awareness and research petition Supporting Trustedoctor’s virtual platform allowing brain tumour patients access to world leading doctors Supporting your child to return to school after diagnosis or treatment Supporting your loved one Taking care of your mental health Taking on the World’s Toughest Mudder! Taking strides this October! Taking To The Airwaves: Ellen’s brain tumour story Tanguy and Maxence’s story Targeting DNA repair protein for the treatment of glioblastoma Targeting the body’s internal clock to treat glioblastoma Task and Finish group on brain tumour research Taylor Swift reveals her mum is battling a brain tumour Tchéky Karyo talks about Baptiste Team Bunter took on Ditchling Beacon to tackle brain tumours Team Ipreo take on Tough Mudder Team Tabei are taking on Everest in the Alps Teenager one of first UK patients to receive Proton Beam Therapy Teenager who felt ‘weird’ at a festival is diagnosed with aggressive brain tumour Telling your loved ones about your brain tumour diagnosis Telomeres- a cancer cell’s fountain of youth Ten-year-old’s scan delay after brain tumour battle Tessa Jowell calls for global collaboration at UK government meeting Tessa Jowell highlights the devastating effect of her brain tumour diagnosis Tessa Jowell to lead high-profile cancer debate Tessa Jowell: A sad loss Tessa Jowell’s House of Lords Debate Thanks for baking a difference! The ‘lucky fall’ which led to a brain tumour diagnosis. The 10-Year Health Plan – Our submission to the government The advances of AI in healthcare The American Brain Tumour Association awards $1million for innovative research The ARISTOCRAT clinical trial – perspective from a patient advocate The ascent begins! The Be More Laura Foundation pledges £25,000 towards pioneering research The Big Meet – Just do it! The BRAIN MATRIX study identifies urgent need for improvement in healthcare services The Brain Race announces winning startups in position to defeat brain tumours The Brain Tumour Charity advises top BBC drama, Casualty, on brain tumour storyline The Brain Tumour Charity and Meningioma UK are to merge The Brain Tumour Charity announces a ground-breaking research partnership The Brain Tumour Charity announces new partnership with The William Low Trust The Brain Tumour Charity appoints new Interim CEO The Brain Tumour Charity asked to lead on discussions around biobanking and early diagnosis The Brain Tumour Charity at the Labour Party 2018 annual conference The Brain Tumour Charity Christmas Cards 2024 The Brain Tumour Charity finalist for Charity of the Year – Third Sector Awards The Brain Tumour Charity Founders awarded MBE’s The Brain Tumour Charity founders awarded New Year Honours The Brain Tumour Charity Listening Project: Shaping support for the future The Brain Tumour Charity meets with Wales Assembly Members The Brain Tumour Charity nominated for a raft of Third Sector Awards The Brain Tumour Charity responds to the news of Tom Parker’s glioblastoma diagnosis The Brain Tumour Charity responds to the surge in demand for our support services The Brain Tumour Charity scoops two accolades at the prestigious Third Sector Awards The Brain Tumour Charity shortlisted for a £100K grant from the Masonic Samaritan Fund The Brain Tumour Charity submits DCVax®-L consultation response The Brain Tumour Charity wins Charity of the Year at the JustGiving Awards! The Brain Tumour Charity’s founder Neil Dickson retires The Brain Tumour Charity’s Head of Strategy, Clare Normand, receives an OBE The Brain Tumour Charity’s response to UK Government proposals on PIP The Cancer Research UK Brain Tumour Conference 2024 The Cancer Tech Accelerator The Charity holds the first ever brain tumour roundtable in Wales The Copping’s story – walking for a cure The Darzi report: breaking down the key themes for the brain tumour community The day everything changed – Guest post by Cameron Walker. The Dell Technologies Management Challenge : Adventure Racing in the Brecon Beacons to raise funds for The Brain Tumour Charity The EU decision: Our strategy continues The Everest Centre lead researcher running virtual London Marathon The future of European scientific research The future regulation of clinical trials The Glad Game and the Power of Positivity The glioblastoma diagnosis that changed our lives The Government’s Welfare Reform: what’s happening and how does it impact the brain tumour community? The headsouth team reach the South Pole! The heartache of both my children being diagnosed with brain tumours The high price of a brain tumour diagnosis: our report out today The hurdles of medical research that face the SNP The impact a gift can make The impact of our Celebrating You Awards The implications of the Scottish Parliament brain tumour debate The importance of a dying wish. The inspiration behind Lewis Moody’s incredible headsouth Antarctica expedition The International Symposium on Paediatric Neuro-oncology The last day of the 2018 Labour Party conference The latest research developments using the Zika virus to treat glioblastoma The launch of Celebrating You 2020 The launch of our devolved nations Manifestos The Lewis Moody Foundation raises over £1million for people affected by brain tumours The Lewis Moody Foundation’s £2 million milestone The London Marathon: a personal blog The mental health effects of caring for someone who has a brain tumour – Guest post by Francesca Silverton The National Cancer Diagnosis Audit will better understand the journey to diagnosis The National Institute for Health Research announces framework for restarting vital studies The need for more research participation opportunities The new NICE guidelines entitled ‘Brain tumours (primary) and brain metastases in adults’ The Oli Hilsdon Foundation smashes fundraising goal 18 months early! The Petitions Committee’s report on funding for research in to brain tumours is released today The Platinum Champions Awards are in honour of Her Majesty The Queen and launched by the Royal Voluntary Service in 2022! The Rare Cancers Bill – why it is the leadership we need The reality of brain tumour treatment and care: new report for policy makers The response to our joint cancer charity letter to the Department of Health The Samantha Dickson Brain Cancer Unit discover brain mechanism that could target future therapies The Scotland Steering Committee at the Scottish Parliament The Scottish Government and Macmillan Cancer Support announce £18m funding for cancer support workers in Scotland The Scottish Steering Committee: Working towards a faster diagnosis in Scotland The second blog from the Society for Neuro-oncology conference The Silas Pullen Fund raises a million pounds for vital research into brain tumours The Stars Will Still Be There The United States Food and Drug Association has approved the investigation of a new immunotherapy drug targeting Glioblastoma The uniting of our international brain tumour community The voices of volunteers supporting us through a pandemic The Wanted release ‘Gold Forever (for Tom)’ The Ways Ahead project – finding better ways to support people with their diagnosis Theresa May’s Speech on the NHS They’re off! The teams begin the second ascent of Everest in the Alps They’re off! The teams begin the third ascent of Everest in the Alps Third Sector praise The Brain Tumour Charity This walking gear is perfect for The Twilight Walk! This week we are participating in The Big Give Christmas Challenge This week we want to spread the word about writing a Will and remembering a charity Thorngrove School raise £40,000 in incredible year of fundraising Thousands surviving for decades after cancer diagnosis… But what about brain tumours? Thousands to benefit from Enhanced Supportive Care programme Three friends, one mission – a 1,500km challenge to cycle to every Premiership Rugby ground Three Peaks Cycle Challenge 2023 Three things from NHS England’s interim workforce plan Three tips to win at gaming and streaming for charity Tips on coping with the change in the seasons To our 2023 Great North Run Team – thank you! To our 2023 London Marathon team – thank you! To our 2024 Machu Picchu team – thank you! Toca-5 gene therapy clinical trial fails Tocagen completes recruitment for a Phase 3 clinical trial for high-grade gliomas Tocagen’s ‘breakthrough’ gene therapy trial will continue Today Sarah Jones MP is to lead a debate on brain tumours in the House of Commons Today’s UK Brain Cancer summit at the Cabinet Office Tom Daley takes on The 2.6 Challenge! Tom Daley talks candidly about losing his Dad to a brain tumour Tom Daley to front our BBC Lifeline appeal Tom Daley’s Olympic poolside meet with our supporters Tom took on 20 walks this year, marking 20 years since his brain tumour diagnosis Top exam tips Top money-saving tips for families in the new year Top tips for carers Top tips for coping with change Top tips for eating well during treatment Top tips for managing the festive season Top tips for sharing your fundraising page Top tips for tackling isolation Top tips for travelling when you’re affected by a brain tumour Top tips from top fundraisers Top tips to care for your mental health Top tips to help with speech and communication difficulties Top-level brain tumour summit follows Tessa Jowell’s call for change Trailblazing Manchester squash event begins Trailblazing Manchester squash event to raise funds and awareness Training in an exo-suit gears up for the London Marathon Travel addict not letting childhood brain tumour keep her on the ground. Travel insurance for children with a brain tumour Treating diffuse midline gliomas with an oncolytic virus Trial finds DCVax-L may prolong the lives of those living with a glioblastoma Tributes after Tasha loses brain tumour fight TV presenter joins ‘epic’ challenge to raise funds for our research TV presenter Sue Perkins reveals she is living with a brain tumour Twilight Own Walks 2025 Two Charities; One Goal. We’ve Partnered with OSCAR’s! Two family charities fund £400,000 towards paediatric research in memory of their sons UCL Institute of Child Health looking for research lab volunteers UK firm and King’s College London behind new robot-assisted brain surgery UK Government announces plan to improve cancer diagnosis UK research into the use of cannabidiol to treat brain tumours UK-based scientists study trace metal elements to identify brain tumours Ulixertinib may change childhood brain tumour treatment Uncovering ways that glioblastomas resist treatment Underbelly launches The Big Brain Benefit Underbelly’s third Big Brain Tumour Benefit raises the roof at Edinburgh Fringe Festival Understanding the survival mechanism of gliomas Unique opportunity for surgery patients to help decode brain tumours United in the call for brain tumour one-year survival targets to be met Uniting our community at Westminster University fashion show raises £28,000 University of Manchester launches application for The Brain Tumour Charity Chair of Neuro-Oncology Unmet needs of patients and carers across the brain tumour pathway Update for the brain tumour community on the National Brain Tumour Research Consortium Update from the Less Survivable Cancers Taskforce Updates from the Society for Neuro-oncology conference Urgent: The Rare Cancers Bill is at risk and we need your help! US doctors test new glioblastoma drug treatment Using ACT to improve quality of life for young brain tumour survivors Using artificial intelligence to assess the treatment response of brain tumours Using CAR-T cell therapy to treat diffuse midline glioma Using robots to help find treatments for glioblastoma Using supercomputers to diagnose brain tumours UX Expert Volunteers Precious Time and Expertise Vicki Michelle MBE, our new High Profile Supporter Victory as team Ocean Valour reach the UK Volunteering at the Charity – Baljit’s story Volunteers’ Week celebrates our amazing volunteers! Volunteers’ week: The importance of our community’s voice Vorasidenib – a promising new drug to treat low grade gliomas Vote for HeadSmart! Walton Centre in Liverpool given top ranking by health watchdog Washington Cancer Moonshot summit chaired by Vice President Biden Ways to help and cope when someone you love is diagnosed with a brain tumour We are co-funding Marie Curie’s call to address gaps in palliative and end of life care research We are hosting the biobanking workshop initiative in London today We are proud to announce the appointment of Professor Alan Palmer as our new trustee We are proud to announce the formation of our Scientific Advisory Boards We have awarded new Future Leaders We know mental health can affect those living with a brain tumour, but are we doing enough? We need faster brain tumour diagnosis – Lily’s story We respond to national roll-out of fast-track cancer testing in England We respond to new NHS waiting times for suspected brain cancer We stand together with all our community in sadness at the news of Tom Parker’s death We’re doing it for Dale! We’re proudly supporting the new NICE “quality standard” for brain tumours We’re teaming up with Motormouth and Movember to raise funds for cancer and mental health We’ve appointed a new CEO We’re joining forces with Eva’s Angels! Wearing an electronic cap to improve glioblastoma survival Welcoming the government’s pledge for increased funding for research into brain tumours Wellbeing App inspired by founder’s own brain tumour diagnosis gets healthcare approval Welsh government publishes second Cancer Patient Experience Survey What are a brain tumour’s early symptoms? What are virtual gifts and how do you use them? What Brexit means for research into brain tumours What could the Labour win mean for a National Brain Tumour Strategy? What could the pledges made at the Liberal Democrat conference mean for the brain tumour community? What do we know about brain tumour waiting times in 2023: six months in What is an adaptive clinical trial? What is excellence in brain tumour care? What is the 10-Year Cancer Plan? What the 10 Year Health Plan means for the brain tumour community What the new NHS drive to quicken diagnosis times means for us What the Plaid Cymru, SNP, Reform UK & Green Party Manifestos mean for the brain tumour community What The Twilight Walk means to our walkers What we like about the NHS Long Term Plan What would it take to close the care gap for brain tumours? What’s happened to the 10-Year Cancer Plan? What’s missing from the NHS England’s long term plan? What’s next for our No Brainer campaign? When work doesn’t work – tackling employment problems Where are the gaps in brain tumour care? Who made the Celebrating You 2023 shortlists? WHO releases updated Classification of Tumours of the Central Nervous System Whole genome sequencing – what is it and how could it help? Why are too many brain tumour patients robbed of a dignified death? Why can’t brain tumour patients try new treatments? Why children with brain tumours need to be heard Why Deliciously Ella’s Matt Mills is running the London Marathon Why getting involved in clinical research is important to me! Why I Support The Brain Tumour Charity from the U.S.A Why is a faster diagnosis for brain tumours so important for everyone? Why it’s important to get your affairs in order Why The Lewis Moody Mega-Tri is the Best Thing I’ve Ever Done Why we are supporting the Brain Tumour Research Petition for more funding into research Why we need a National Brain Tumour Strategy: Simon and Ella’s story Why we need politicians to be part of our Brainy Bunch Why we’re campaigning for faster diagnosis Why we’re investing in new brain tumour fund Wickes announces The Brain Tumour Charity as new charity partner Wickes partnership raises £2million for The Brain Tumour Charity Wickes’ partnership one-year anniversary with The Brain Tumour Charity passes the £1,000,000 mark Widening the debate around treatment Wife praises CNS who provided ‘invaluable support’ following husband’s diagnosis. Will you help us speak with One Cancer Voice? Will’s Walk smashes fundraising target! Wishing Diving Duo Tom Daley and Noah Williams, Olympic Games success! Woman’s brain tumour diagnosis inspired her to become a neuro nurse Working with NHS England to improve access to Clinical Nurse Specialists World-leading expert appointed as The Brain Tumour Charity neuro-oncology chair at University of Manchester You could be one of these charity raffle winners! You could win Tom Daley knitted designs! You took strides to change lives – thank you! You took strides to change lives at The Twilight Walk – thank you! You’re invited to our APPG on brain tumours Young Ambassador hosts a memorial match for her dad Young Ambassador meets Caroline Lucas MP Young Ambassador Mel becomes Cheshire Woman of the Year Young girl’s epilepsy scan found a rare brain tumour Your coronavirus questions answered by experts Your radiotherapy questions answered Your rehabilitation questions answered by experts Your support was key to our Third Sector’s Charity of the Year 2018 award Your vote for innovation Zoe’s story