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Our work is only possible with the support of our incredible community. Together we can take action and effect change. We’ll be in touch soon with more information.
In the meantime, you can catch up on our latest updates from the Policy & Campaigns team using the links below.
- Enabling Faster, Better Diagnosis: The Scottish Steering Committee’s Renewed Commitment
We provide an update on the Scottish Steering Committees decided ambitions and objectives that members will seek to achieve. - Campaigning together: pushing for change as Parliament returns
In this post we provide an update on recent Campaigns activity including on the Rare Cancers Bill and the NIHR-funded National Brain Tumour Research Consortium. - Update for the brain tumour community on the National Brain Tumour Research Consortium
Following our previous statement in April 2025, we share the latest update on activity linked to the National Brain Tumour Research Consortium - Gathering insights on potential barriers to innovation
This week we hosted a roundtable with representatives from the life sciences sector to begin to understand potential barriers to innovation across the UK. - Dordaviprone – springs of hope, but a long way to go
Dordaviprone, also known as ONC201, offers new hope for treating H3 K27M-Mutated Diffuse Midline Glioma. But, there’s a long way to go before it’s ready for use on the NHS. - National Cancer Plan: Targeting the challenge
We explore the upcoming National Cancer Plan targets and their potential impact on survival gaps in cancer treatment. - New Scottish guidelines aim to speed up brain tumour diagnosis
NHS Scotland has published updated referral guidance for suspected cancers – including brain. We share information on some of the key changes that have been made. - The Government’s Welfare Reform: what’s happening and how does it impact the brain tumour community?
We’ve broken down what the proposed reforms were, what’s changed, and what it means for our community. - Urgent: The Rare Cancers Bill is at risk and we need your help!The Rare Cancers Bill is at risk of falling – we urge supporters to get in touch with their MP to ensure it progresses.