Join our Involvement Network
Help us shape the future of The Charity, the services we provide and the research we fund.
Joining our Involvement Network empowers you to use your personal experiences with brain tumours to help shape the work being done by The Charity. You can get involved in lots of different ways, from reviewing our information, taking part in a virtual focus group to sharing your story, or completing a survey.
Signing up to join the Involvement Network doesn’t mean you’re obligated to take part in every opportunity – just choose the opportunities that match your experience and interest. You can give as much or little time as you like and only when it suits you
Each month, we’ll email you with opportunities to get involved that we think match your experience and interests, as well as updates on the work you’ve been involved in so you can see the huge difference you make.
As well as our Involvement Network, we have two other involvement groups who give their input and work with us on a range of activities,. These groups are our Young Ambassadors and Involvement Champions.
Our contributions as volunteers means our own experiences and knowledge help play a really important part in contributing to the awareness and further success of the Charity and its ongoing pursuits to improve medical research, which in turn improves the lives of those battling this hidden yet serious health condition.
Nicola, Involvement volunteer
Frequently asked questions
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Our Involvement Network is what we call our group of flexible volunteers who use their experiences of brain tumours to help inform the work we do – whether they’ve been diagnosed themselves or know somebody who’s received a brain tumour diagnosis.
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There are lots of different ways you can take part in the Involvement Network, including:
- virtual focus groups
- completing surveys
- reviewing our information
- sharing your story.
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Each month we’ll send you an email with a selection of involvement opportunities that match your experience and interests.
All opportunities we outline provide a general overview of the activity and how much of a time commitment will be required.
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Being part of the network is an extremely flexible role and you can volunteer to take part in as many involvement opportunities as you like each month. If you’re unable to take part in any opportunities for any reason, you can volunteer your time whenever you’re next able.
We’ll let you know how much time we expect an opportunity will require before you volunteer, so you’re able to manage your time better.
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Absolutely anybody can join the Involvement Network if they’ve been affected by a brain tumour and are over the age of 16. This includes:
- those living with a brain tumour
- people who were previously diagnosed with a brain tumour but had the tumour successfully removed
- anybody who has a loved one who’s living with a brain tumour
- those who have lost a loved one to a brain tumour.
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Don’t worry too much if you’re unable to take part in something you’ve volunteered for. You’ll still be a valuable part of the Involvement Network and be able to volunteer for future opportunities
But, if you could let us know you aren’t able to attend by emailing us at [email protected], that would be amazing.