Brain tumour support: 10 ways we can help
Whether you’ve been diagnosed with a brain tumour, or it’s a family member or friend, we are here to help. Our brain tumour support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child.
Here you can reach our helpful team to get information about brain tumours or just talk about how you’re feeling. You can also find brain tumour support groups and even find out about financial support available to you. Also, you can learn more about our BRIAN app, hear about and connect with other people, and much more. Take a look at the links below to find the brain tumour support you need.
Plus, find out more about the brain tumour support and information we provide for healthcare professionals and teachers.
1. Choose your next steps
Our Step by Step interactive guide walks you through what to expect at each stage after your diagnosis. You’ll find questions to ask your healthcare team, suggested actions for you to take and useful resources for you to explore.
2. Speak to our team
Our team is here to listen, support you and help with any information you need. Email us at [email protected], call us using 0808 800 0004 or start a live chat today.
3. Help for children & families
We have a dedicated team specialising in supporting your family and children with advice, events, parents’ groups, education resources, animations and more.
4. Support for young adults
Our Young Adults team and Young Ambassadors focus on supporting 16-30 year olds, with advice and videos, communities, events, employment and education resources and more.
5. Just diagnosed?
Our Information Pack gives you everything you need to know in one manageable package. Perfect for if you, or someone you know, has just been diagnosed.
6. Join our online brain tumour support groups
Connect directly with other people affected by a brain tumour diagnosis in our online brain tumour support groups on Facebook, HealthUnlocked and Instagram.
7. Use BRIAN to take control
Our BRIAN app will help you manage your experience day-to-day and the data you input will help accelerate research into brain tumours.
8. Listen to our podcast
Join us as we talk to people affected by a brain tumour about their experiences.
9. Look after your mental health
Our free counselling services provide a safe space to talk about the impact that a diagnosis has had on your wellbeing or relationships.
10. Get help with money and benefits
Our free, confidential, expert money and benefits clinic is a partnership with Citizens Advice. Book an appointment to access specialist advice and support.
And three ways you can help us
1. Improve treatment and care
Share your experiences in our Improving Brain Tumour Care surveys. Your feedback will highlight best practice and gaps in care and help us improve care for all.
2. Use your experience to drive change
Your experiences make you an expert. If you’d like to use that expertise to make things better, there are lots of simple opportunities to get involved.
3. Fundraise for us
As part of our inspirational team of fundraisers, you can help us to find a cure faster and make a real difference to the lives of those affected by a brain tumour sooner.