Author: Glenn Saitch
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Launch of the first ever Less Survivable Cancers Awareness Day
As part of the Less Survivable Cancers Taskforce we’re urging everyone to be more aware of the symptoms of these six cancers and seek medical help at the earliest opportunity if they recognise the signs.
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New Tessa Jowell Centres of Excellence announced
Two more NHS Brain Tumour Centres have obtained Tessa Jowell Centre of Excellence status, joining nine others across the UK.
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We’re proudly supporting the new NICE “quality standard” for brain tumours
The new quality standard from the National Institute for Health and Care Excellence (NICE) is designed to help improve the quality of care provided by the NHS to those diagnosed with a brain tumour.
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All-Party Parliamentary Group on Brain Tumours meets to break down barriers to a cure
On Tuesday 7 December, the All-Party Parliamentary Group on Brain Tumours held a virtual meeting to discuss current policy issues including setting out why a cure is desperately needed.
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One Cancer Voice seeks Government clarity on cancer commitments in the Spending Review
Thanks to your help, the petition reached over 53,000 signatures and now One Cancer Voice is calling on the Government to clarify their commitments to strengthening the cancer workforce in the UK.
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“Our friend Iggy was an inspiration!”
We’re so saddened to hear of the death of our dear friend and passionate long-term supporter Alan “Iggy” Igglesden yesterday morning, at the age of 57.
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Landmark study transforms our understanding of meningiomas
Research funded by The Brain Tumour Charity has revealed a new way of classifying meningiomas that can more accurately predict how a tumour will behave and help clinicians identify patients who may benefit from more aggressive treatment earlier. Crucially, researchers have also potentially identified the first-ever drug treatment for most-aggressive forms of meningioma.
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Will you help us speak with One Cancer Voice?
Add your voice to ours by signing the Parliamentary Petition calling for the Government to urgently invest in establishing the UK as a world-beating force in cancer survival and care.
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Driving down diagnosis times in Scotland
Our Optical Engagement Manager, Lorcan Butler, is delighted to be partnering with opticians and optometrists in Scotland to help diagnose brain tumours earlier.
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“If it wasn’t for our desperation, we wouldn’t have got a scan.”
Rhudi Baume-Kennedy, 20, explains how his experience of spending nine months trying to get a diagnosis for his symptoms has driven his support for The Charity’s work.
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Make losing a loved one count and how we can help
While there’s no escaping the grief caused by losing someone to a brain tumour, our supporters have shared how they made sure those final moments count.
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“One minute we’d welcomed Erin into the world. The next, I was told I had a brain tumour.”
Dominique, mother-of-two, reveals how she was diagnosed with a brain tumour just three weeks after giving birth and the toll this took on her mental health.
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“The Brain Tumour Charity helps me feel that I am not alone.”
Kirstin, a communications professional and mum-of-two, had vivid hallucinations and visual disturbances put down to an ear infection before she was diagnosed with a brain tumour.
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“I had read so much about other cancer types but nothing about brain tumours – that’s not OK and we need to raise their profile more.”
A daughter who lost her beloved dad to the most aggressive form of brain tumour has shared her heartfelt and candid motivation for completing fundraising challenges to support The Brain Tumour Charity.
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“This would become an experience which completely changed the course of my life and my dreams in every single way.”
“Do not doubt the potential which you carry within yourself” is the powerful mantra of an inspirational woman whose marriage collapsed after she had been diagnosed with multiple brain tumours.
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Launching our Manifesto for Scotland ahead of the May Parliament elections
Our Manifesto urges local MSP candidates to pledge support for those affected by a brain tumour in Scotland.
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“I was training to be a nurse so I knew exactly how important it was to listen to the patient. But I felt that no one was listening to me!”
A nurse who almost lost the vision in her right eye due to an undiagnosed brain tumour and had her symptoms blamed on peri menopause has been putting her best foot forward to raise money for The Brain Tumour Charity.
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“Never lose hope and to live your best life regardless of where you are in your brain tumour journey.”
Diana has has shared the acute pain she has experienced since losing Gunnar, her adored husband and father to their children, to a brain tumour. She hopes illustrate the difficulties the family faced since Gunnar’s diagnosis.
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Coronavirus (COVID-19) and brain tumours
We hope this information will help address some of our community’s concerns about the coronavirus (COVID-19). UPDATED 29 July 2021
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Fundraising during lockdown: Andy’s story
A dedicated fundraiser who lost his wife to a brain tumour has completed a virtual walk from John O’Groat’s to Lands End and back to support The Brain Tumour Charity.
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Your coronavirus questions answered by experts
We’ve collected all the answers from our recent virtual coronavirus Q&A with expert medical professionals from Imperial College Healthcare NHS Trust and The Walton Centre.
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Diagnosis and treatment during the coronavirus pandemic
If you have potential symptoms of a brain tumour, or an existing diagnosis with recurring symptoms, it’s important not to delay seeking advice, even during the covid-19 pandemic.
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“There’s a need for greater emotional support!”
After being diagnosed with a grade 2 meningioma in January 2017, Andy believes he received world-class physical care but his emotional support was lacking. He recently took part in our Improving Brain Tumour Care surveys, to help improve care across the country for everybody affected by a brain tumour.
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Your rehabilitation questions answered by experts
We’ve collected all the answers from our recent virtual rehabilitation Q&A with expert medical professionals from Imperial College Healthcare NHS Trust.