Category: Policy & Public Affairs

This Brain Tumour Awareness Month we held three events in the parliaments of Scotland, Wales and Westminster. Highlighting our new It’s a No Brainer campaign and enabling volunteers to share their experiences with policymakers.

Our open letter now has 40,000 signatures. But we’re not done yet! There’s still time to sign it before we close the open letter on 15 April.

On 29 February, we stood outside Westminster alongside 34 members of the brain tumour community to launch our campaign calling for a National Brain Tumour Strategy. Read on to find out why.

We’re marking World Cancer Day by looking at the ways that existing strategies for tackling cancer can inadvertently exclude the brain tumour community.

Following Less Survivable Cancers Awareness Day, our advocates at the events share their experience of attending and what they would like to see happen next.

An update from our Policy and Campaigns team following an exciting week in Scotland.

An update on the Scottish Steering Committee’s new objectives and next steps.

CRUK has just launched a manifesto with five priority actions for the next government. We take a look at how they align with the needs of the brain tumour community.

We recently attended the NICE 2023 conference and share some of the key takeaways we gathered from the event.

More research funding is essential for finding better treatments for brain tumours and ultimately helping people live longer and better. We outline why we are supporting the live petition on brain tumour research.

We break down some of the key takeaways from the Labour Party Annual Conference and what they could mean for people diagnosed with a brain tumour.

We explore the key health and care takeaways from the Conservative Party conference – and what this could mean for the brain tumour community.

Theo Burrell shares her experience of advocating for faster diagnosis of brain tumours at the latest meeting of the Scottish Cross Party Group on Cancer.

We break down some of the pledges made at the Liberal Democrat party conference and what they could mean for people diagnosed with a brain tumour.

One in four people in the UK dies without the care and support they need. We need to change this, but we need your help to do it. Take our palliative care survey and your voice could have an impact.

We will be working with NICE as they assess a new paediatric glioma treatment and ensuring the community has its voice heard as part of this process.

We explore NHS England data to find out what it means for brain tumour waiting times in the first six months of 2023.

Your responses to our Improving Brain Tumour Care surveys have helped us understand what gaps exist in brain tumour care – here’s how we’re filling those gaps.

Results show that brain cancer has the lowest rating of care across all cancer types.

We praise the launch of OurBrainBank’s new policy report and share how it ties in with our research strategy and innovations around treatment for glioblastomas.

In this guest post, Ingela Oberg, an adult neuro-oncology nurse manager at Addenbrookes Hospital in Cambridge, explains why she went into medicine and what her role entails.

We look at what NHS England’s Long-Term Workforce Plan could mean for the brain tumour community.

The Scottish Government has launched its Cancer Strategy outlining its plan to improve cancer services and overall survival in the next 10 years.

Laura Nuttall, who passed away from a brain tumour on Monday 22 May, has inspired an Early Day Motion (EDM) to be put forward in parliament. Find out about this EDM and why it is a lovely way to pay tribute to this inspirational campaigner.