Category: Policy & Public Affairs

Two more NHS Brain Tumour Centres have obtained Tessa Jowell Centre of Excellence status, joining nine others across the UK.

The new quality standard from the National Institute for Health and Care Excellence (NICE) is designed to help improve the quality of care provided by the NHS to those diagnosed with a brain tumour.

On Tuesday 7 December, the All-Party Parliamentary Group on Brain Tumours held a virtual meeting to discuss current policy issues including setting out why a cure is desperately needed.

Jeremy, one of our Young Ambassadors, recently attended an online lobbying event organised by the All-Party Parliamentary Group on Cancer and wrote about his experience.

Thanks to your help, the petition reached over 53,000 signatures and now One Cancer Voice is calling on the Government to clarify their commitments to strengthening the cancer workforce in the UK.

Add your voice to ours by signing the Parliamentary Petition calling for the Government to urgently invest in establishing the UK as a world-beating force in cancer survival and care.

Back in April, we published our brain tumour manifesto ahead of the Scottish Parliament elections to lay out the action the next Scottish Government needs to take to deliver vital progress for those affected by a brain tumour in Scotland.

Our Manifesto urges local MSP candidates to pledge support for those affected by a brain tumour in Scotland.

We are working with Kirsten Oswald, MP for East Renfrewshire & SNP Westminster Deputy Leader

The Less Survivable Cancers Taskforce (LSCT) is calling for focus, prioritisation and investment in order to speed up the detection and diagnosis of the UK’s deadliest cancers.

As a key member of the LSCT, we met with the Scottish Government’s Cancer Policy Team for a virtual roundtable on Monday 6 July

Several high profile stories and a grandmother’s petition reaches this week’s PMQs and brain tumours are scheduled for a parliamentary debate

Fiona started the petition to call the Government to tackle hard to treat childhood cancers after her grandson died from a brain tumour.

Last Monday we met with our partners in the Less Survivable Cancers Taskforce (LSCT), in preparation for a virtual roundtable with the Scottish Government’s Cancer Policy team next week.

COVID-19 is an unprecedented crisis which has had a profound impact on health and care services across the UK and will continue to have an impact for the months and years to come.

Our CEO, Sarah Lindsell, responds to The Government’s recent announcement regarding funding for the Charity sector during the coronavirus (COVID-19) pandemic.

As part of its response to the coronavirus COVID-19 pandemic, the Government identified individuals who are ‘extremely vulnerable’ – that is, those at ‘very high risk of severe illness’ from the virus.

Since the vote for Brexit in 2016, there has been the possibility of the UK leaving the EU without a deal. Consequently, to avoid disruption if supply routes from the EU were affected, the Government asked pharmaceutical companies to stockpile an extra six weeks’ worth of medicines.

When her grandson Logan died from a DIPG brain tumour in 2017, Fiona vowed to drive change for everyone affected.

With the UK in the Brexit transition period until the end of the year, regulation of clinical trials is likely to be under discussion in UK-EU negotiations on the future relationship

The level of funding into the research of brain tumours in the UK has increased overall by a third, according to figures released by the National Cancer Research Institute (NCRI).

Our Young Ambassador, Hannah Kinsell, visited Westminster yesterday to speak to MPs about the work of The Brain Tumour Charity as part of World Cancer Day.

Launched by Fiona Govan, whose grandson died from a DIPG in 2017, the petition aims to accelerate research.

The number of brain tumours diagnosed among children has shown little change from the previous year, according to provisional, cancer registration data released by Public Health England (PHE).