Category: Policy & Public Affairs

The Parental Bereavement (Leave and Pay) Bill has just passed its third reading in the House of Lords and is expected to come into force in April 2020.

On Tuesday night, MPs in Westminster adopted an amendment to the Trade Bill which indicates support for the United Kingdom remaining in the regulatory framework of the European Medicines Agency (EMA)

These guidelines, published today, have been updated for the first time in over a decade

Last week the Government announced that people with severe, life-long conditions will no longer have to attend regular reviews for Personal Independence Payment (PIP).

Helena Brown, our Policy & Public Affairs Assistant, outlines the current postcode disparity in patient experience

Last week, Billy Caldwell, a severely epileptic twelve year old boy, had his cannabis oil confiscated at Heathrow airport

Keilan Arblaster, our Policy Involvement Assistant, outlines the implications of this bill for our community

Tonight we watched an emotional Panorama following three families as they contend with a high grade brain tumour diagnosis.

Kielan Arblastar, our Policy & Affairs Assistant, discusses the implications of the US Government’s Right to Try bill

We have joined forces with other leading charities to form The Children and Young People Cancer Coalition and highlight areas where we believe progress is needed.

Following Tessa Jowell’s death, the government has tonight pledged its renewed commitment to research into brain tumours

Our thoughts today are first and foremost with Tessa Jowell’s family, who have lost someone irreplaceable and loved beyond measure.

Tessa Jowell’s decision to share her brain tumour diagnosis in September last year was a watershed moment for thousands of people whose lives have been affected by the disease.

Grace Latter writes about the Young Ambassadors raising issues at Parliament on Tuesday

An emotional debate covering two important issues that Baroness Jowell has been campaigning on since her diagnosis, data and adaptive clinical trials.

The debate follows a landmark summit on brain tumours in London in February, triggered by Baroness Tessa Jowell’s experience following her own diagnosis last year

Our Policy & Public affairs Manager Cameron Miller, outlines the progress made

Miles Briggs MSP is to chair a roundtable discussion on brain tumours in the Scottish Parliament, bringing together researchers, clinicians, patients and carers with the goal of improving outcomes for brain tumour patients in Scotland.

This week we held a drop-in event in Parliament for MPs. The event was a huge success, with around 40 MPs attending.

People living with a brain tumour need better access to financial help, we’ll tell MPs at a meeting today

The Government must make progress and send a clear message to patients that there will be no delay in access to these life-saving cancer drugs after we leave the European Union

Every family affected by a brain tumour was promised “action not words” today at a landmark meeting in the battle to defeat brain tumours

The Government has today called for greater innovation in brain tumour research, as it publishes a landmark review into brain cancer research in the UK

We will voice the hope and determination of everyone in our community today when we join government ministers, fellow campaigners and researchers at a crucial meeting today in the battle against brain tumours