Category: Policy & Public Affairs

Yesterday saw the launch of the Less Survivable Cancers Taskforce to an audience of members of the Scottish Parliament in Holyrood, Edinburgh

The Brain Tumour Charity CEO, Sarah Lindsell, has co-signed a letter to NHS organisations urging them to meet their one-year survival targets for the early diagnosis of brain tumours.

While Theresa May admits division in Westminster, our Chief Executive Sarah Lindsell says we must stand together stronger than ever to defeat brain tumours.

From establishing a new cancer taskforce to ensuring benefits reviews take brain tumour patients into account, read our roundup of key activities from the past few weeks.

Ally Rooney posts an open letter to doctors, nurses, and allied health professionals who care for people with a brain tumour.

Last year, Greater Manchester became the first English region to gain control of health spending. Read our view on the impact this has had on charities.

On Sunday 26 March, the House of Lords Select Committee on Charities published a report, ‘Stronger charities for a stronger society’, following an inquiry into issues facing the charity sector in England and Wales.

Many news outlets are today reporting concerns from medical research institutions that childhood cancer patients in the UK will miss out on access to clinical trials for new treatments following Brexit.

Cameron Miller, our Information & Support Services Manager, outlines the growing trend for crowdfunding for treatment funds.

On Monday The Brain Tumour Charity attended the second meeting of the task and finish working group on research into brain tumour (TFWG) which was set up by the Department of Health to address barriers to research.

Policy Officer, James Thorneycroft, discusses how leaving the EU could affect research into brain tumours.

David Jenkinson, Chief Scientific Officer at The Brain Tumour Charity, discusses laying foundations for more effective brain tumour treatments.

In response to overwhelming concerns from our community The Brain Tumour Charity met with the Driver and Vehicle Licensing Agency (DVLA) in Swansea to discuss issues around driving and brain tumours.

A drug that can extend the lives of brain tumour patients is being withheld by some NHS Trusts on the grounds of cost.

Beccy Shortt, our Senior Policy and Public Affairs Manager at The Brain Tumour Charity explores the barriers surrounding brain tumour research.

Patients diagnosed with cancer should be told clearly how the NHS will store and use information about their case to help others in future, says a new report.

The Science and Technology Select Committee has today published a new report on the implications and opportunities of leaving the EU for science and research in the UK.

We attended the Task and Finish Group on brain tumour research. As experts in the brain tumour research landscape, we were invited to be part of this group following the petitions committee debate on the funding of research.

While a new study reveals people are twice as likely to live at least 10 years after being diagnosed with cancer than at the start of the 1970s, this doesn’t tell the complete story.

One in two people affected by a brain tumour experience financial difficulty and 28% of people with a brain tumour had to give up work entirely.

An innovative programme to improve the care and experience of patients with incurable cancer is being rolled out across the country.

People affected by a brain tumour continue to report a poorer experience of diagnosis, treatment and care when compared across all cancers according to the largest survey of cancer patients in England.

The National Institute for Health and Care Excellence (NICE) have today released a new Quality Standard (QS) for referral when Cancer is suspected.

On the 23rd June 2016 the UK voted to leave the European Union (EU). We do not yet know how this will affect the brain tumour community.