Category: Support
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New glioblastoma and anaplastic astrocytoma book
Gideon Burrows has written his second book with personal stories, experiences, statistics and information, helped by a huge amount of people directly affected
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Ex- England Rugby Captain Lewis Moody to join families at Gloucestershire Family Day
The Wilderness Centre will host The Brain Tumour Charity’s Gloucestershire Family day next month as part of the charity’s commitment to supporting all those affected by this devastating disease.
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Launching our Live Chat service
As part of our commitment to improving life today for those affected by brain tumours, we’re excited to announce the expansion of our support offering as we roll out Live Chat
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A mother’s journey through grief and loss
In a profoundly moving and honest account, Sarah Pullen describes the heart-breaking reality of life after her son Silas’s brain tumour diagnosis in her new book, A Mighty Boy.
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Launching our Young Adult Service
Our new Young Adult Service aims to help young people aged 16-30 feel less isolated after devastating diagnosis
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Delivering equal access to benefits for brain tumour patients
Over the last three years, The Brain Tumour Charity has expressed concerns about the assessment criteria used for Personal Independence Payments (PIPs), and their impact on people affected by a brain tumour.
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An unexpected journey
Our Director of Services and Influencing, Emma Tingley, shares her thoughts on navigating the system after a brain tumour diagnosis, and our recently launched Patient Guide.
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Our Patient Guide to Brain Tumour Treatment and Services launches today
Our Patient Guide launches today to help people living with a brain tumour better navigate the healthcare system.
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Support for brain tumours: why we need to get personal
Our Director of Services and Influencing, Emma Tingley, discusses the importance of sharing your experiences and talking about the effects of a brain tumour.
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Perthshire hosts Family Day for brain tumour families
Crieff, Perthshire will host the fun-filled activity day for children with a brain tumour and their families on Sat 3 September.
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Losing My Place: The Reality of Childhood with a Brain Tumour published today
‘Losing My Place: The Reality of Childhood with a Brain Tumour’, the third report from our Life with a Brain Tumour project – the most comprehensive study of its kind, is published today.
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WHO releases updated Classification of Tumours of the Central Nervous System
The World Health Organisation (WHO) has released an updated edition of the 2007 Classification of Tumours of the Central Nervous System.
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Cancer patient designs ‘Cancer on board’ badges
Cancer patient James McNaught has designed ‘Cancer on board’ badges to help him get a seat on public transport. The 45-year-old civil servant spent three months travelling on the Tube to University College Hospital.
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How can we cut delays to brain tumour diagnosis? Dr Paul Brennan
Dr Paul Brennan explores when is a headache ‘just a headache’ and when could it signal a brain tumour?
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Introducing our latest animation: My Brother has a Brain Tumour
We are proud to unveil our latest animation, My Brother has a Brain Tumour. The animation has been designed to help children come to terms with the diagnosis of a sibling and aims to improve life today for families affected.
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Parents of boy who died from a brain tumour create videogame experience
Colorado parents Ryan and Amy Green, have developed That Dragon, Cancer, an interactive videogame experience that documents their 5 year old son, Joel and his struggle and death from a rare form of paediatric brain tumour.
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Children and young people survey extended
Our survey looking at quality of life issues in children, young people and families has been extended to ensure our findings have the biggest possible impact, we’d like closer to 500.
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GBM diagnosis inspires innovative patient support strategy
An American not-for-profit organisation is recruiting students to join their cancer support fellowship TaketheFight
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Losing Myself report reveals the hardship and isolation faced by brain tumour patients
Thousands of brain tumour patients in the UK are struggling to cope financially and emotionally in the face of ignorance about the disease, says a report out today (Monday July 20).
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Building connections to better care
We interviewed Anna Crofton, Lead Clinical Nurse Specialist at The Walton Centre, who regularly exchanges experiences and ideas with a wider network of healthcare professionals. (Thursday 09 July)
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Carers Week 2015
We are supporting Carers Week, an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities.
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Paediatric Brain Tumour Information Day
Together with the team at Southampton General Hospital, we held our very first Paediatric Information Day last Saturday.
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Why are too many brain tumour patients robbed of a dignified death?
Death. There, we’ve said it. Stark. Frightening. Taboo. We won’t – or can’t – talk about dying. Only by shattering this taboo and, as a society, openly discussing it, can we dilute that fear.
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When work doesn’t work – tackling employment problems
This is a guest post by Hatton James Legal, an employment law specialist based in Birmingham.