Category: Supporter stories

Madi Bayfield, a Young Ambassador and fundraiser for The Charity, organises a football match in memory of her dad, Mat.

Sports commentator Rob Walker, is set to cycle and run from John O’Groats to Land’s End in memory of four friends who passed away in the last two years.

Five weeks after the London Marathon, Camilla, who is undergoing treatment for a glioblastoma brain tumour, looks back on a race she thought she might not be able to start, let alone finish.

US musician Josh explains how making music is helping him navigate chemotherapy treatment for a brain tumour.

Baljit Ahluwalia, one of our Involvement Volunteers, attended a fundraising event held by the Atwal Family. Here’s her account of what happened.

Ben Johnson, 24, from Islington, was diagnosed with a brain tumour in November 2019, after suffering a seizure while at university in London.

Jerome van Leeuwen, age 42, originally from The Netherlands and now living in Fife, Scotland was first diagnosed with a pilocytic astrocytoma brain tumour when he was just two years old, it later returned in his 30s.

Now he is training for his first race after diagnosis – the Bournemouth Bay Run

Tom, from London, will stride out across the UK this year to raise funds and awareness of brain tumours. His next walk is Kielder Water, Northumberland, this weekend.

Karen Bucknall, 52, from Gloucestershire was diagnosed with a brain tumour in 2021 after she sought an explanation for the headaches she was experiencing throughout her chemotherapy treatment for stage 3 bowel cancer.

Earlier this Brain Tumour Awareness Month we caught up with one of our Trustees, Hayley Conroy, to learn more about the devastating diagnosis experience that her granddaughter, Lily, and family went through. Ahead of the launch of our faster diagnosis report in just two weeks’ time, we are talking about how important a quick, well-supported, and earlier brain tumour diagnosis process is. You can read our previous blog about why we are campaigning on this here.

Ramona Read was just nine-years-old when she was diagnosed with a low-grade pilocytic astrocytoma in 2021. Her mum, Vicky, shares their story ahead of their appearance on Channel 4’s The Dog House – where families are matched with dogs who hope to find their forever home.

Despite living with a grade four glioblastoma, John will be taking on the London Marathon this March alongside his wife Rachel.

We asked you to limber up and lunge into the New Year with Challenge 88 – a challenge for charity- and you did us proud! 

Kate Baker, a Neuro Critical Care Nurse from Essex, advocates for the importance of knowing the signs and symptoms of brain tumours after her own brain tumour diagnosis.

Abbie, a young girl from Nottingham was diagnosed with a rare pleomorphic xanthoastrocytoma brain tumour during a routine MRI scan for epilepsy.

Namrata and Bhavesh Pandya, from Harrow, are calling for more research into DIPG brain tumours

Double vision and frightening flashing black and white lights inspired a young woman to head to A&E for an emergency scan. She just knew something was wrong.

James was first diagnosed with a brain tumour after having a seizure in 2018. Since then, he has had two awake craniotomies and a string of treatment types. Here, he shares his story on how he has navigated the uncertainty which came with it all.

A mum-of-two who had surgery to remove a brain tumour counts herself as lucky after her optician encouraged her to have her symptoms investigated.

Jade Mcmaster, 31, was diagnosed with a brain tumour after having a seizure whilst she was on a petrol station forecourt.

Natasha Tims, 30, from Chard spent the first years of her life plagued by the symptoms of an undiagnosed brain tumour.

Molly Day, 25, from Birmingham spent nearly 12 years of her life living with the undiagnosed symptoms of a brain tumour.

A woman who was diagnosed with a brain tumour last year is encouraging people to get checked if they have symptoms.