Category: Uncategorized

Meet the “Marvellous Marshians”, a group of friends from Kent who are taking on their third 20 mile fundraising walk for The Charity.

Anya needed 18 months of rehabilitation for an acoustic neuroma. Here’s her account of what happened.

Siobhan and family turned a group headshave into a Family Fun Day and raised nearly £12k!

Adrian Conoboy MBE is the Founder and Director of We Can Kick It, a charity that harnesses the power of football to help children cope with cancer. In this post, he explains how his own brain tumour diagnosis inspired We Can Kick It.

Warwick Ashburner, from Preston, swam 13.2 miles in Coniston Water – to raise funds and awareness of brain tumours

The Q&A will be held in BRIAN, our online app for people affected by a brain tumour. It’s free to attend and easy to sign up.

Sarah Lindsell and Professor Ashkan discuss the difference BRIAN will make to researchers and healthcare professionals in helping to diagnose, treat and manage brain tumours

This pioneering analytical partnership with Public Health England’s National Disease Registration Service will lead to us collaborating much more closely, in order to improve the availability of brain tumour information for the benefit of our community.

With BRIAN you can track your brain tumour experience and donate your data to help accelerate a cure. But did you know BRIAN can support you in many other ways too?

BRIAN has been designed for everyone, whether you’re living with a brain tumour, caring for someone who is, or you work in healthcare or research. You can also be a part of BRIAN if you’ve lost someone to a brain tumour by contributing valuable historical data. Here, three users explain how BRIAN has helped them.

Our High Profile Supporters throw their weight behind the development of BRIAN.

We’re delighted to announce that The Brain Tumour Charity has become one of the first charities to join the UK Health Data Research Alliance to improve the quality of data and make it easily accessible for a more innovative and dynamic UK-wide health and care system.

The Brain Tumour Charity has long been an advocate for creative and pioneering solutions to the complex problem of brain tumours.

Taz Cheema, our Business Analyst discusses how the patient community have led the development of our data-sharing initiative, BRIAN

Yesterday NHS England began the roll-out of the new NHS App across six regions in England

Today sees the launch of the Universal Cancer Databank (UCD), which aims to gather information from people diagnosed with cancer around the world to speed up progress towards a cure

Pioneering web-app will help patients and researchers

The brain tumour databank launches today. This ground breaking project will revolutionise the way brain tumour data is used worldwide

We are launching a global, patient-led data bank, which will allow patients to unite in sharing their data, helping them to make better informed decisions about their own treatment plans, as well as helping vital research that could bring us closer to finding a cure.

As part of £4bn upgrade of the NHS’ online services, the plan is that this data will be able to improve online resources such as medical records, prescriptions and symptom advice services.

Dr Jem Rashbass, National Director for Disease Registration at Public Health England, has posted a new Public Health England blog about the importance of cancer data.