Neil and Angela Dickson, Charity Founders of The Brain Tumour Charity, have today been awarded MBE’s for their services to the brain tumour community. (Friday 17 July).

We interviewed Anna Crofton, Lead Clinical Nurse Specialist at The Walton Centre, who regularly exchanges experiences and ideas with a wider network of healthcare professionals. (Thursday 09 July)

Anne and Vanessa, the mums of Tom and Lawrence who are currently at sea for three months raising funds for The Charity, share some words about their sons. (Wednesday 01 July)

We welcome the publication of the ‘Top 10 Neuro-Oncology Uncertainties’, identified by the James Lind Alliance (JLA) as having highest importance to people with a brain tumour.

The Brain Tumour Charity has been shortlisted to the final stages of the Masonic Samaritan Fund Silver Jubilee Research Fund vote, for a chance to be awarded a grant of £100,000 to fund our Centre of Excellence at University College London.

We are proud to launch our new strategy to double survival and halve the harm that brain tumours have on quality of life.

On Saturday 30 May, Farnborough Sainsbury’s held a balloon release and race to mark the end of their year long partnership with The Brain Tumour Charity.

Lyn Roberts spoke to us about her experiences as a full-time carer for her husband David.

We are supporting Carers Week, an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities.

Sacha Langton-Gilks lost her 16-year-old son David (DD) to a brain tumour in 2012. We invited her to share her family’s experience, and her passion for improvement in end-of-life care. This is an edited version of the speech she gave at our first paediatric brain tumour information day, which was held in Southampton in May 2015.

Together with the team at Southampton General Hospital, we held our very first Paediatric Information Day last Saturday.

“Clinical trials are essential to giving brain tumour patients more of life’s best moments because we cannot get better treatment without them.” – Ken, who had a glioblastoma removed in 2014, is now on a clinical trial.

To mark International Clinical Trials Day on 20 May, we are supporting the Ok to Ask campaign, getting more patients enrolled in clinical trials.

The Academy of Medical Royal Colleges’ document Choosing Wisely – which has been widely reported in the media – says doctors should work with patients to cut out treatments and procedures which are of ‘questionable value’.

Death. There, we’ve said it. Stark. Frightening. Taboo. We won’t – or can’t – talk about dying. Only by shattering this taboo and, as a society, openly discussing it, can we dilute that fear.

Should donors and fundraisers have more choice over where their money is spent? It’s an ongoing debate among charities not just in the UK, but all over the world.

If you have a brain tumour, should it be a luxury to know you will always be able to talk to one person in your medical team who knows about brain tumours and – crucially – knows about your brain tumour and its impact on you?

This is a guest post by Hatton James Legal, an employment law specialist based in Birmingham.

In the past five years, more than 45,000 people in the UK have been diagnosed with a brain tumour. That’s 45,000 lives turned upside down.

Funded by The Brain Tumour Charity, Dr Chris Jones at the Institute of Cancer Research has deepened our understanding of childhood high grade gliomas.