Podcasts

In this episode, we talk to Alex, Katie and Martin. At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally.

In this episode, we talk to Liam Young about his recovery from his brain tumour.

In this episode we talk to Bethan and Gbenga Adelekan who’s son Ravi was diagnosed with a brain tumour when he was just 6 years old.

In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma’s.

In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life.

In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18.

(Trigger Warning) In this episode – Benj talks about the impact of his daughter Ivy’s diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family.

We hosted our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis.

(Trigger Warning) In this episode – Benj talks us through every parent’s worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later.

If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do.

In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients.

In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours.

In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours.

In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity.

In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV.

In this episode, we talk to Hannah Waldron about the TIME Art Exhibition .

In this episode we talk to Elizabeth and Julia the hosts of the podcast ‘On a good day’ about their experiences of caring for their partners who both live with the impacts of brain injury.

In this episode, Chandos talks to Denise one of our benefits advisers.

In this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity.

We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last.

In this episode, we talk about some of the challenges of having a brain tumour over the festive season.

In this episode, Anna talks to fellow young ambassadors Rhudi and Victoria about the Young Ambassador Program which is a 2-year program tum by the charity for young people aged 18 – 25.

In this episode, we’re joined again by Sacha Langton-Gilks to talk about how to prepare for the death of a loved one and explore what it means to give someone a good death and help them die well.