Podcasts
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Episode 31 – Spotlight on Community Fundraising – How our community helps fund research
In this episode, Chandos talks to Community Fundraiser Firzana Khan about how our community works with the charity to raise money for vital research into better treatments and cures for brain tumours.
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Episode 30 – The importance of an Advance Care Plan
In this episode we talk about the importance of having an Advance Care Plan in place, what it is, how you go about doing one an why it is so important.
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Episode 29 – Spotlight Revisited – National Eye Health Week
This episode was recorded in September 2021 but as this week is National Eye Health week we thought we’d revisit this episode where Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses.
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Episode 28 – What exactly is Gamma Knife?
In this episode, myself and Andy talk to Katie about Gamma Knife Radiotherapy also known as Stereotactic Radiotherapy.
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Episode 27 – Spotlight on the Charity Lottery
In this episode Chandos talks to Tamsin Tyson our Individual Giving Officer about the recently launched charity lottery.
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Episode 26 – What’s it like to have a craniotomy?
n this episode, we talk to Rob, diagnosed with a grade 2 glioma, and Carly, with a grade 2 oligodendroglioma, about what it’s like to have a craniotomy.
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Episode 25 – Spotlight on Signs and Symptoms – How we created a campaign
In this episode we talk to Ali Lopez, the charity’s Campaigns and Communications Manager about how the charity created the new Signs And Symptoms campaign that the charity recently launched to raise awareness of the signs and symptoms of brain tumours.
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Episode 24 – Scanxiety
In this episode, we talk to Betty and Sarah about their experience of having scans and the very real anxiety that often goes with this.
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Episode 23 – Spotlight on Improving Brain Tumour Care
In this episode, senior involvement and impact manager Shannon Winslade joins Chandos to talk about how you can help us to improve the treatment and care of people diagnosed with a brain tumour.
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Episode 22 – Sibling Grief
In this episode I talk to Kaz and Lauren about what it’s like to loose a sibling to a brain tumour.
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Episode 21 – Spotlight on Strategy Update – Beyond Brain Tumours
In this episode, Chandos talks to Andy about his involvement with the new strategy the charity is co-creating with the community.
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Episode 20 – Dating and relationships after a diagnosis
In this episode, Chandos and our guest Laura talk candidly about the reality of dating after a brain tumour diagnosis and the difficulties of online dating and telling a prospective partner.
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Episode 19 – Spotlight with Alex Lochrane (CEO)
In this episode, we meet our newest co-host Anna Blyszko as she and Chandos talk to our new CEO, Alex Lochrane.
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Episode 18 – Life after active treatment
In this episode, we talk to Lucy and Lauren who share what it means to be successfully treated following a brain tumour diagnosis.
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Episode 17 – Spotlight on ‘How I use BRIAN
In this episode Chandos talks to Nicola about how she uses the BRIAN app to help her manage some of the side effects of her diagnosis, including using it to track side effects, to remember when she has a seizure and to keep a record so she can show her husband, family members and also her medical team.
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Episode 16 – A Parent’s Experience part 2 – Moving forward and looking to the future
In the second part of our interview with Kerry, she talks about life after treatment and moving forward to a new future. Thinking about the services and support that have helped her and how having a brain tumour diagnosis can sometimes mean you are not always signposted to the right support.
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Episode 15 – Part 1 – A Parent’s Experience – Surviving Brain Surgery Day
n this, the first of two episodes, myself and Sara Challice talk to Kerry, whose son Rowan was diagnosed with a brain tumour shortly after he was born.
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Episode 14 – Spotlight on Coping At Christmas
We know that whilst Christmas can and often is a great time of year, it can also bring with it some challenges if you are living with a brain tumour or caring for someone who has a tumour. In this episode, Cam, Chandos and Sara share some of the things they have found have helped them cope during the Christmas break.
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Episode 13 – 3am Awake Club
In this episode we talk to Andy Tudor about how being diagnosed with a meningioma 5 years ago has impacted his life.
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Episode 12 – Spotlight On Fundraising Events
In this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to Sarah Castleman, Events Manager at the charity
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Episode 11 – Caring for a parent – a young persons perspective
In this episode we talk to Kaj Mistry who was just 22 when her dad was diagnosed with a brain tumour.
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Episode 10 -Spotlight on Volunteering for the Charity
In this episode Amie Frayne talks about her role as the Volunteer Development Manager and what a vital role volunteers play in just about every aspect of the charity.
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Episode 9 – What’s it like to get diagnosed as a child?
In this episode we hear from Rosie who was diagnosed with a brain tumour when she was just 8 years old.
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Episode 8 – Spotlight on National Eye Health Week
In this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses.